I have just turned 43 years old and am hoping that you lovely people may be able to help/give advice… apologies in advance if this post sounds quite moany (appears that is my general mood at the moment)
brief history… in December i developed numbness/pins and needles in my chin/lip area this coincided with toothache and a abscess) After several weeks of having this numb sensation i mentioned it to my dentist who asked if i had any other incidents on numbness it was then that i remembered the following
October .after several weeks of having a achey arm woke up with what i would describe as a dead arm, coupled with stiffness and limited movement went to gp and it eventually (after a week or so wore off) still have dull ache but other than that all good
December… numbness/pins and needles in chin/lip started (still have to this day)
February… went to get up and was unable to place foot to the floor …coupled with dead feeling but also discomfort, this only lasted 20 mins or so and then was completely back to normal
On reflection and having looked at ms symptoms i am pretty certain i have also experienced ms hug several times (approx 18 months/2 years ago… sounds silly but i was carrying extra weight back then and i just thought it was cramp in my ribs where i had a lot of fat in that area) Ive been shattered for years but again thought it was a combination of late nights/early mornings and having twin boys lol
My dentist said i should see my Gp but said he would also refer me to maxillofacial (just incase numbness was due to abbcess)
gp said straight away he was concerned it was ms and i was very fortunate to see a neurologist within 2 weeks of my gp referral. However without wishing to sound ungrateful or moaning i have been very unhappy with what has/hasnt happened since. The neurologist almost came across as disinterested and i constantly had to ask questions, all my questions were answered with grunts, the outcome of the appt and examination was she thought it could be ms (this was only because i had to push her and ask what she thought it may be, she said she would arrange a mri and it should be done within 4-6 weeks.
On seeing maxillo facial and explaining my symptoms consultant said i can tell you now i would say its ms as i have it and your symptoms are almost identical to mine (Expect he shouldn’t have said it but he did) he said he would have arranged mri but seeing as neurology were doing it he would leave it with them.
Since then i have rang the hospital as still awaiting the mri date and have been told that they had recd the mri request but she had failed to date all the mri requests so they have been sent back to neurology… rang today again to be told they have now got the request and i can call again on monday if i still have not heard anything (this will be 4 weeks since my appt with her) finally got the clinical letter today which states the following
“the neurological examination showed slightly increased deep tendon reflexes with cloniform ankle reflexes on both sides and hypoaesthesia over her second and third trigeminal branches on her left more than right side. Her tandem was slightly unsteady”
letter states she has ordered a brain mri… i thought if ms was suspected it would be a brain and spinal cord mri??..i have spoken to her today in relation to this and she was clearly unhappy that i was querying this, she said basically that if it is ms it is will show in a brain scan they would then to a mri of spinal cord but basically in her words it would be a waste of money to do a mri of spinal cord too until there is proof from brain mri. Apparently this is normal /standard practise and i must stop worrying and be more patient!!
In the last week i have had severe achyness/stiffness in both arms and legs i know ive become more aware of how im feeling and i am trying really hard not to get stressed out but feel really frustrated with the whole thing.
Ive read a lot on these forums that it can be a long drawn out process but am i being unreasonable in expecting to have at least a mri date by now? and in your experience do most people with suspected ms also have a spinal mri too? Im not really sure where i go from here other than trying to be more patient but every day right now feels like a week and i just feel so disgruntled by the consultant. I think i will feel happier once i at least get a date for mri but am wondering how long after mri do you get answers, judging by experience so far could be a very long wait, Could i possibly ask to see a different neurologist (for results) or will this just get their backs up??
Sorry for long post just needed to get it all out , thanks for taking time to read
Best wishes xx