Hi everyone
i was poorly Monday evening (pain and spasms) woke up Tuesday and walking was quite laboured. This has been getting progressively worse and i can now barely stand, never mind walk, for more than a couple of minutes without great pain and difficulty. Popped to my doctors this morning and they’ve signed me off work until the end of the month.
They’ve suggested that I call the nurse as it might be a relapse of some sorts, but worried if I do they might suggest steroids again (which I am not happy to take orally or via IV)
It’s been nearly a year since my last relapse (June 2015) and everything has been going well on the Fingolimod.
does anyone else think this could be relapse related or just one of those crazy pain in the butt things?
kat
To be honest Kat, it does sound like a relapse. But did your doctors check that you’ve not got a UTI? Sometimes that can masquerade as a relapse.
I understand that you don’t want steroids, but every time you take them the effects can be different. I’m not by any means saying take them regardless, just keep an open mind. If it’s a very bad relapse then it might be worth considering.
Sue
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They did all the usual tests and I’ve got no infections. Also for the past 48 hours I’ve found it difficult to pass urine, which is funny given I’ve been the complete opposite for the last few months.
Well, it does sound like a relapse. (Sorry!) Do you have an MS nurse to contact to discuss?
Ah man. Was just hoping it was one of those things. Doctor gave me a number to call her on. May give her a bell tomorrow. Thanks.