should i still fight for answer or give up

Hi all

i have had many symptoms ranging from numbness and tingling to what i think is ms hug also the electric shock feeling when i tilted my head farward

i got mri and and this showed 1 lesion on c5 spine last year they diagnosed me with cis

since then most signs have went away intill recently

my pulse has been racing for over 2 months and all blood tests to see if there is a problem with my heart or other things was fine

had 24hr ecg and everything was fine apart from my pulse racing aswell got told i have sinus tachicardiaby doc

only thing is there is no reason why this is happening i have questioned if this could be to do with ms

and they says dont think so , but i have had enough and looked up this on the internet and low and behold there is a link with autonomic dysfunction but everytime i mention this to docs they keep brushing it of

also i cant seem to keep heat in my body so need to turn heating on alot but when my body heats up my whole body goes into a shake which makes me feel drained that i dont feel i can do anything

should i keep at docs or give up as i feel like they are not listening to me xx

Nooooo. Never give up. Life is too short to make do.

Never give up, I know what you mean about them not listening, but still keep going and tell them how you feel.

Jan x

thank mrsh and janet

i just feel they are going to put this onto something else like anxiety as they do alot with people, i know my own body and def not that . this all happened out the blue with the heart rate i just got up in the morning and it started and has been going on for over 2 months i am a happy person and not worried about anything ,im such a possitive person didnt even let the thought of ms get me down as right now i can still walk and do things , docs always say what are you worried about erm i have 3 young kids to look after with my heart racing for no reason and i dont have any clues to what has caused this , and when i do mention it could be to do with cis they look at me as though im just adding more but i just want answers , even phoned neuro to ask if tachicardia could be linked and simple answer was no they dont think so but on reading the net and says it can

lucy xx

well , i just got phone call from doc , she wanted to do blood tests again and said if they come bk normal this time she will contact my neuro as they have no answers so i think i got through to them

i know this could be a long shot but its worth checking as everything else fine

My GP says its anxiety also, I just think that is so thoughtless of them, because you are right we do know our bodies and we know when we are ill or not…I have had MS symptoms now for over yr, and 18 ago I could say I had anxiety and depression, but with help and support I have got over that, and learnt to deal with issues. On the other hand though the pain and symptoms I am dealing with is a nightmare.

I felt let down by my GP 2weeks ago, and I dont think she was really listerning to me, she mentioned CFS, but then said"I dont like that term"…I am at my wits end!!!

Jan xx

jan i have been at my wits end now for over 2 months i have had my pulse rate taken lots of times and all been up but just the body feeling tells me its not lasted that long and feeling like i cant do nothing for feeling tired is anxiety i cant even get comfy when sitting top of my back has recently been getting sore ,i felt as though they had big joke wrote on my notes in docs thats why i asked if i should give up trying , but today got that call to redo tests if they come back hopefully the neuro listens to doc as neuro says she dont think it was to do with cis the other month when i phoned

maybe its better to keep on at them and not give up

lucy xx

Hi, i`m glad to read your gp is taking some actions on your behalf.

As you say, you know your own body.

ive fought for 14 yrs and have been told I probably have PPMS, then HSP, then PPMS again and now its spastic paraparesis, cause unknown.

keep hanging in there girl!

luv Pollx

thanks all

i will keep you all updated to what is happening

ty again

hugs to all xx