Bit confused about everything

New diagnosis and before diagnosis
1

Hello,

I am very new to all this and so sorry in advance if what I say isn’t quite relevant or doesn’t make much sense, this is my first post so please bare with! Last summer I experienced my eyesight to go blurry for about a month and then it just went away, I had an MRI where I was told I had an inflammed brain and this was a case of CIS. I was told I had an 80% chance of getting MS.

Since then I have been taking Vitamin D and magnesium, I have quit smoking after 7 years and have tried to remain extremely active. I am not scheduled to have another appointment until June of this year as the chances of me having a relapse so soon are very unlikely. I know that I will now probably be looking out for signs of MS now, wondering if any little thing is my relapse that will then confirm MS but at the moment I am feeling this a lot more than usual. Whenever I think this I instantly dismiss it and tell myself I’m being stupid. However over the last few weeks I have become incredibly shaky and have been having heart palpitations often along with feeling very hot a lot of the time, something very odd to me as I normally am always cold. I am doing my MA at the moment and am finding it very hard to work as I cannot ignore this shakiness and dizziness. I’m sure I am just being stupid and might just be stressed and tired but I just wanted to write it down here I suppose to have confirmation I am just being silly and there is no need to look into it.

This whole MS thing has not exactly been the nicest thing to deal with, and I guess this is what I hate the most about it, that I feel I am constantly looking over my shoulder just incase something I’m feeling is MS, always second guessing when in actual fact, it’s probably nothing. I feel that these things that are happening to me I would never have even given a second thought to before but now they’re just at the forefront of my mind.

Sorry for rambling! Any advice or comments would truly be appreciated, I am 22 years old and know no one that has got MS or anyone my age that has had a similar diagnosis so I guess I am also feeling a bit alone and out of my depth with all of this so really any help would mean a lot to me.

Thank you!

2

Hi there, I’m relatively new to this forum thing, I got diagnosed in 2011. I had optical nutritious in 2005, and had no sight at all in my right eye for a week, my sight came back by its self, but when I saw the neuro he said there was some scar tissue damage on my brain and it may result in ms, but much later on in life. 6 yrs later I had 6 months of not knowing what the hell was going on, and after a lot of tooing and froing they eventually came to the conclusion of ms, bit complicated and long winded!!!. I like u kept wondering after diagnosis , is that related is This related, I kept a diary for a while and jotted thins down on a daily basis, I’m on meds, but now I’ve got to the point of putting my ms to the back of my mind and living my life and stopped trying to analysed everything, Everyone is different and have their own coping techniques, this may not have helped, . I’ve also found that since I’ve stopped worrying about my ms, i feel much better in my self, Hope u find answers

3

Hiya

Thanks for replying to me, it does help to know i’m not going slightly insane and over reacting about all this. I think that is the only thing I can really do, put it to the back of my mind because I don’t think I’m going to get any answers anytime soon. I just find it quite frustrating not knowing what is going to happen and feeling guilty of putting the people I care about through this when it might not even happen.

Thank you for your words, though, I am going to try and put it to the back of my mind, thinking about it is just self defeating I guess.

Thangs again :slight_smile: