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Shellyonthebeach.

Hello there Michelle. Just a shout out to you and hope you’re doing okay x

Hi Michelle

Yes hope you’re doing ok as well, you have been missed on the forum.

Pam x

I have missed you too Michelle.I hope you are ok.

J x

Thanks , I’ve just been very low in myself, tomorrow it’s two months since my Dad died . It doesn’t matter how old you are , I just feel so sad. The tiredness has been unbelievable too. I’ve felt very flat and not even felt I could contribute to the group. Thanks so much for asking. Michelle and Frazer xx

The loss of a parent is always sad, however old they, or you, are. It’s been 32 years since I lost mine and I still miss him. Listen to your body telling you it’s tired. Sleep is a great healer. Xx

Take care of yourself Michelle and listen to your body, we all understand.

It’s been 40 years ago that I lost my Dad and 21 years for my Mum, and believe me it’s still hard, I miss them so much, so I really do understand.

(((Hugs)))

Pam x

I feel sick at the idea of losing a parent so I can only imagine… Sending love and hugs to you x

Hello Michelle. Hugs and woof x

Thanks you are all so kind ,I think it’s hit my sisters and myself hard we never expected to lose him. Thanks for sharing your own experiences.

I’ve got the results from my mri in May .The neurologist is saying it’s not ms as there hasn’t been any changes , there are some white spots but not indicating ms. So I’m left with Functional neurological disorder as my diagnosis. The symptoms are very similar to ms, but there hasn’t been as much research. It’s not well known about with little funding and support. They say some people get better but very few completely recover. I’ve got better in many ways from 5 years ago but only in the fact that I’ve accepted my situation and have a much more positive outlook on life . Still don’t know where I’d be without my power chair and my loyal Frazer (assistance dog) …he doesn’t care what my label is …He loves me unconditionally .

ive loved chatting with you all, this forum has helped me so much but feel free to kick me off the group.

Michelle and Frazer xx

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Michelle, there will be no kicking you off here, you are a much-loved member of this group and i for one don’t want you to stop coming on here.It’s not about labels it is all about the friendships built on here. So please don’t think you don’t belong here.

((((((hugs))))))

J x

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Good heavens Michelle! Why on earth should you be kicked off the group? There are one or two members on here I wish were, but you are so gentle and kind in your posts. I for one love reading about "the life and times " of the Beach Family. Stick with us xx I wish Pols/Boudicca had. I miss her.

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Thanks Jackie, you are really kind . The friendship of people on here has made a big difference to me .

Michelle and Frazer xx

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Thank you so much Polly , I really appreciate your kind words. I’d love to stay with this group , it’s helped me so much coming on this forum . I started my journey feeling scared and guilty and as if my life had changed far beyond recognition. I feel empowered when I come on here and inspired by the courage. I’m so much better mentally than when I started off.

Thanks so much everyone for accepting me and Frazer

Love Michelle and Frazer xx

Hi Michelle,

What’s all this about being kicked off, you are one of the gang, so I am afraid there is no jumping ship (unlike the government) so please don’t even consider it.

Having a label doesn’t mean one person’s problems are worse than another’s, we are all in this together, and we would miss you and Fraser too much.

Pam x

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Erm… you’re part of the family AND we’d miss Frazer! Just stay, Simplez!!!

Sonia xx

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What happened to Boudicca? I don’t often go on the everyday living section but had wondered where she was…

Sonia x

[quote=“nindancer”]

What happened to Boudicca? I don’t often go on the everyday living section but had wondered where she was…

Sonia x

[/quote] Hi Sonia. I think because she definitely didn’t have ms (and I’m not even sure if she was even given a diagnosis of anything) she felt it was time to leave the group. Such a shame. I liked her matter of fact, sensible replies.

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Thanks Poppy I remember her talking about leaving once before due to the non-diagnosis etc. I agree it’s a shame too as she’s clearly got a neurological basis for her problems and she was straight talking x

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yes she was,i miss Poll too.

Hi Shelly

Have you seen What Is FND - FND Hope International There’s quite a lot of info on there about Functional Neurological Disorder.

And I’m quite sure that after years on this forum, no one would ever want to lose you. Just as no one wanted (or expected) to lose Poll.

Sue