Set off this morning to see neuro thinking he would probably suggest i have LP or other tests, but no he diagnosed me with PPMS and said id probably had it about 10 years.He is going to contact ms nurse at my local hospital and send me some information.
Its so strange to say i have been diagnosed with ms as so many many times i have thought yes my symptoms sound like ms and then other times i have thought no it cant be ms.
Im sure as the night moves on and i digest it i will have something of interest to say, feel lost for words at the moment.
Relieved you got an answer but sad to hear of anyone else getting this diagnosis. I’m 3 years in and I’m still finding it hard at times. I’ll be honest, I still breakdown in tears over silly things that I’ll never do again. So the only good advice I can give you is to take it easy on yourself and don’t overdo it, MS hates that!
You’re in a good place here if you need to talk, our group here is lovely and I’ve got no idea how I’d have coped without the internet to be honest, just for basics like getting allocated an MS nurse, getting physio and Neuro rehabilitation.
Take care, sending you a big hug as you probably need a few of those
I hope you have lots of support and come to this forum whenever you feel like it.
Give yourself lots of time. I was numb after my initial diagnosis, although it was no surprise, and it took time for the dust to settle and my questions to take shape.
Hi Christine sorry to hear of your diagnosis, as the others have said take your time to come to terms and be kind to yourself. You are no different today than you were yesterday, except you now have a name for what ails you.
I am SP although I’m often on this Forum it’s kind of calm and relaxing and everyone is so nice.
Christine, Well at least now you know what you are dealing with. Sorry but typing difficult tonight. Just wanted to say. You are not alone e. We are all here. And. It is not the end of a good life. Just différé t. Anne Sending g hugs
Hi Christine,sorry to hear you have got an MS diagnosis,its going to take time to set your head round it. it took me a good 2 yr ,its a grieving process for some,i went through,denial,anger all sorts of emotions,one day i was fine next day really bad.
you will find your own way through it though,and at least you know now,i found being in limbo was really hard.
I use to read posts on here about people getting a diagnosis and thought of the relief that would bring. Now its here and does bring relief along with a million other questions and feelings.
Thats what i was thinkinh, nothing has changed since yesterday. My daughter told her boyfriend id been diagnosed with ms and he said to her do you want me to come over with you…i found it really strange as my symptoms had not changed and he took no interest in my condition before, maybe it does bring with it a respectability.
Thanks MrsJ, i agree, limbo was so difficult and even yesterday before my appointment i was thinking what i would do if i had to have an LP, i was ready to give up. But now i have joined a group that a few months ago was not on my radar.
Coming on here with this lovelygroup will help you, they have helped me so much,it really helps coming on here,you dont feel so alone with the MS.Theres always someone ready to offer good advice.
Hi Christine, it does take time to get your head round it but I think you’ll also have a feeling of relief. Limbo is awful and now you have a firm dx and know what’s causing the symptoms.
Give yourself time to get used to it, and just when you think you’re used to it you’ll have another OMG I’ve got MS!!! I don’t have those moments now…dx 8 years ago…but I did have them for the first few years!
At least now you know what is causing your symptoms, give yourself time to get your head round it, but you will cope in your own way, and knowing you’re amongst friends on here will help greatly.
Remember that nothing has changed for you since yesterday, you are still you, it’s just your symptoms now have a name.
Like everyone else, I would say to take it easy. Now you know you’re up against the beast, you can have confidence in the advice these wonderful people are always here to give. I think my symptoms came ten years before diagnosis.
My symptoms for many years have been very vague and only in recent months have i had numbness/pins and needles. I didnt really suspect ms until the onset of numbness which i have daily now. How true that ms is different for everyone.
Hello Christine, I’m so pleased that you have got some answers, sad as it is you probably feel a real sense of relief. I’m still in limbo. Iv’e been in my wheelchair for the last 3 years and although I’ve got some mobility in the house its never improved enough to allow me to get back to walking anywhere outside the home. I’m battling vertigo and fatigue which along ith the weakness is making me feel sick but i just try to get along as best as i can. I had CBT ast year and it helped me such a lot, i’m much more positive about what is happening to me and its helped me to cope without a diagnosis and to embrace the me i am today. I must admit even though i’m in limbo land regarding a diagnosis i haven’t lacked support for the practical things that i need. I get the full pips care and also direct payments which means i get support in the home and helps me to carry on being a mum to my children, and i have a wonderful assistance dog called Frazer he has given me my life back.
I hope that you get the support an help that you need the group on here is really good.
Thanks Michelle, like you i have various forms of support along with been diagnosed with M.E. fibro ect. MS was not something i thought of until a few months ago when i started to get leg numbness. I had previous spine and brain mris and was told there were no significant abnormalities. Having seen a new neuro he found both spinal and brain lesions consistent with ms. Yes there is relief and a feeling that i dont have to attend appointment after appointment only to be told they cant find anything wrong.
I admire your attitude in dealing with your condition and focussing on living with the challenges you face.