Diagnosed today

Primary progressive MS
21

Hi, Christine thanks for your message. Did you go private? Iv’e thought about it but can’t afford to at the moment, and as much as i’d love to know, i suppose it wouldn’t change anything except emotionally, i must admit id love to have some closure. As for support iv’e done well getting help in the home and pips iv’e not had to fight for anything, i think when they see me they can tell i’m genuine. I’m still in the system, i asked for a second opinion out of area and the Neuro i saw said he would review all of my scans. Sometimes it can take time to find out, but I’m of the opinion that even if they never give me a label I want to enjoy what iv’e got while iv’e got it. I know my own body and although some have suggested stress ( in your mind ) I know its far more than that.

Be kind to yourself, although the relief must be great i’m sure you feel very sad too.

Tae care Michelle xx

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22

Hi Michelle,

Yes i did go private to see neuro that diagnosed me. I had lost so much faith in previous neuro and he came out with very odd statements such as my leg numbness could be due to my crohns disease, i have had crohns for years and years had never had numbness before. When i told him i wanted to second opinion he said he would refer me to his friend, no way i thought so decided to look for ms specialist.

When i had first appointment with ms neuro he knew after doing relexes that i had spinal lesions. So for me after years and years of seeing different medics i was diagnosed within a couple of months,

Do you have any thoughts on what is causing your symptoms?

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