I have an appointment with my consultant this Wednesday coming. I think he might be giving me my diagnosis as my doctor gave me a copy of the letter he sent her. This was after my LP and it basically said that it was positive and “obviously this is in keeping with a diagnosis of Multiple Sclerosis”.
First of all I am writing a list of all my new long lasting symptoms for him to see and also timelines. Anything else I need to ask him when I see him. I am terrified that he is not going to give me a diagnosis. I was so sure when I first saw the letter and so is my GP but now getting scared.
I don’t want to get home and think of things so please tell me what I should ask xxx
What to ask is really personal, but I reckon there are three key questions:
I am not coping with some of my symptoms. Please can you prescribe something / refer me to someone to help me, or recommend something for my GP to act on in your letter to him/her?
If I have RRMS, can you prescribe DMDs/DMTs? (If he says no, ask why. If he says he can’t actually prescribe them at all (not all neuros can!), ask for a referral to someone who can, assuming it’s RRMS you have. Even if you aren’t eligible now, you may be at a later stage and it’ll make life much easier if you’re with someone who can prescribe.)
What are the name, phone number and email address of my MS nurse?
Thank you both for your replies. I have been having nightmares about it
Basically my doctor said he is more than likely going to give me a diagnosis so I told my friends and family as I was sure too. Now im getting worried that he isn’t. I don’t care, I know it is MS so if he doesn’t im not telling anyone (unless he has another diagnosis).
I just want help and meds for things that are wrong. I also want an MS nurse to ring if I need to. I have so many problems that I need to talk to someone about that are linked to this.