Hi all, I hope everyone is doing well. I have my second MRI on Thursday (first one 3months ago after first attack). I am a mess thinking about it. I am afraid of any new activity that may show up. My blurred vision and balance have seemed to have gotten worse over the past 3 months which leaves me feeling not very optimistic. Would DMDs be mentioned after two MRIs? I’m going back to Australia at the start of October so fingers crossed all is clear. Ash x
Everything crossed for you, Ash. Catherine Xx
Thank you Catherine. Xo
Blimey Ash, that seems to have come round quick! Hope it goes ok. I would imagine that if there are signs of new activity they might ask you to start thinking about dmds so it is worth asking yourself now whether this is something you would consider. I was diagnosed at the end of may and saw the ms specialist at the start of this month. She said she was starting me on rebif. Actually, when I think about it there wasn’t much of a discussion/consultation. I was just told what was going to happen and said okay! I have been experiencing lots of symptoms since dx and just experiencing another mild sensory relapse so I’m quite happy to get started. Hope you get on ok x
Hey Sunflower, I know where does the time go to eh!? It’s crazy! I first posted to the boards when I got back from oz in June, the summer has just flew by from then! I understand if there are signs of new activity then dmds will be an option. I just don’t know where to go from here though. I have been putting off booking my flights to Australia for a while now, as but I really want to get them booked as they are going up in price the longer I wait, so I am thinking of booking this weekend. However, alot of people including my mum have said ah why don’t you wait until you get the results of the scan etc. I assume the process (if needs be) of MRI results and starting dmds would take a few months anyway and I just don’t have that time (only have until may 2014 left on my oz visa!). My heads in a bit of a pickle, but like I said hopefully no new activity and I can forget about MS for another wee while 
Ash x
I hope all goes well Ash. I am glad that you are planning to back to Oz as I know you really wanted to.
Let us know how you get on
Moyna xxx
Thank you Moyna. Yes I really want to and I know I will regret it in years to come if I don’t finish my working holiday. Of course I will keep you all posted. P.s I don’t really post that often on this board that often and when I do it is usually for some moral support and silly questions, but I read it every day and it has really helped me come to terms with things and get my head around everything. Thanks again. Ash x
I suppose I would decide whether you feel you can still enjoy your time in Australia and if you think you can, and would feel ok delaying the DMTs then go for it. Life’s too short! I was dx after a speedy referral and until then had not even considered ms but the neuro thinks I’ve had it at least 5 years. The way I look at it that’s 5 years of not worrying, questioning everything and having people trying to wrap me in cotton wool and I’m quite glad of that! Obviously it’s your decision to make but I think if I was in your shoes I’d be off like a shot x
I suppose I would decide whether you feel you can still enjoy your time in Australia and if you think you can, and would feel ok delaying the DMTs then go for it. Life’s too short! I was dx after a speedy referral and until then had not even considered ms but the neuro thinks I’ve had it at least 5 years. The way I look at it that’s 5 years of not worrying, questioning everything and having people trying to wrap me in cotton wool and I’m quite glad of that! Obviously it’s your decision to make but I think if I was in your shoes I’d be off like a shot x
Oops posted twice there, sorry!
I’m booking my flight this weekend, hopefully the MRI is clear and if not ill cross that bridge when I come to it Ash x
Hi Ashmash,
When you say you are coming back to Australia at the start of October are you coming back here for good? The reason I ask is that if the answer is “Yes” you may want to hold off starting DMDs until you get back here.
More of the orals have been released here than in the UK and so there are more options available here. We now have Fingolimod and Aubagio available and starting in October BG12 will be available through certain MS clinics on Product Familiarisation Programmes. If you live in Victoria it would be worth geting an appointment with either the MS clinic at Monash Hospital or Box Hill Hospital. Just a thought anyway.
Regardless, all the best for your MRI and let’s hope the MS is behaving itself. It is a bit of a mixed blessing this one, isn’t it? If it shows more activity and is the green light for starting DMDs this is a really positive thing as it means you can now start taking postive action to control the MS but of course at the same time no one likes seeing stark evidence of yet more damage
B