Just saying hello and I guess getting it off my chest.
Fell ill on the 8th of last month and have been off work with SSP since 20th
Basically I had felt the pins and needles long before but it soon went away and wasn’t consistent enough to get me concerned.
3 months prior I had a very heavy right arm and legs which doc thinks might of been an attack. I carried on and it recovered by itself in a week and half, GP went with bells palsy.
Long story short I was diagnosed and discharged 30/8/23 and have been unstable on feet since, never fallen over thankfully, just need to regain balance repeatedly.
Face is tingling and left arm is numb. (Consistently since discharge)
Sometimes feels like I have a lump in throat.
And quite often speech is slurred / stuttered (this was what initially caused me to think it was more serious) this come back the more I talk with people.
I’ve started some processes, informed the relevant people (to my determent)
But honestly not much I can do until I see the specialist MS nurse in a month.
As someone who’s spent most of his life enjoying being independent, this sucks but is not the worst. I just hope sometime soon I won’t need rely on people dropping food round or helping me at home.
End of day my job was a field engineer, so I can’t see that continuing as it required a lot of walking, driving and carrying heavy tools etc
Should be clearer with time, but I’ve had very little info on this that I haven’t found out myself from contacts.
I’m hoping specialist nurse will lighten the burden with some knowledge and what things to apply to.
I am sorry that you have had this news about your health. MS tends to strike when we’re young adults, establishing ourselves in the world and enjoying our independence, relishing our responsibilities and surveying a wide range of life options. If you’re feeling a bit at sea, that’s not surprising. What you are going through just now is a notoriously difficult time. All I can say is that things tend to feel a bit better when the shock has settled and some sort of a plan takes shape.
I hope that you get some clarity about your situation and your treatment options very soon.
I hope you are having a ‘better’ day today - I know good days can seem few and far between at times, so hopefully the use of better days will make us feel more positive.
I too, am new to the forum, but seeing your post I had to reply and say things will get better, and more organised, once you start your journey with the MS Teams they will be able to clarify things for you.
I too suffered with balance issues, and the GP prescribed something to help with that and it did help, but I have also been doing some balance exercises and over the last month or so things have improved a lot.
I have been prescribed Gabapentin to help with the pains that are there, and I’m only on day 7, they knock me about a little bit, and today I have started with a tablet in the morning and one in the evening -my speech is slurring and I stutter too, the more I talk the worse it gets, thankfully my friends & family are being super supportive as it’s upsetting, frustrating and down right irritating.
Don’t give up! Symptoms can be managed to a certain extent, and the MS Teams will help you.
Know how you feel just being diagnosed myself at 34. Having to ask people for help with stuff that was just so easy before is gonna take some getting used to.
I don’t see why you think I’m being “awfully treated” I’m frustrated at the lack of information sure. But the 2 weeks in hospital were necessary and staff very nice.
I guess I just expected to have a specialist I could call or who would call me and explain the next steps when I was discharged and waiting on more informative appointments.
This was my first experience really needing anything, sorry if you got offended I didn’t know this was normal.
Appreciate all the helpful messages and reassurance, things certainly aren’t clearer yet, but thankful now the news is settling in.
I’m getting used to no longer being in control (literally and figuratively:)
Hi again. Think I misunderstood what you said about being discharged.
I took it to mean discharged from neurology altogether, but now I see you meant as an in patient!
Silly me. Sorry.
Boudsx