I have been reading this forum for a little while and wanted to thank everyone who posts their experiences as it makes me feel less alone.
I am currently waiting the hospital to ring with an MRI appointment as my consultant rang me on Friday to say a recent nerve conduction study was clear and she wanted the MRI done within 2 weeks. I was referred to her initially because my GP thought my numb hands could be ulna nerve damage but this has turned out not to be the case.
I have a lot of other symptoms, problems with walking, pain, severe fatigue, falling over, dropping things etc but there are 2 things complicating everything. The 1st is I have a congenital bone disease, screwed joints in my feet so it hurts to walk anyway. Also last year I survived a brain haemorrhage and have been left with balance problems, weakness in my right side and severe fatigue. So you can see how it is all getting confused. Now the neuro consultant is saying she is sure this is either a trapped nerve in my neck but as she was previously sure it was ulna nerve damage I am trying to prepare myself for it not being that. I am also preparing myself that the MRI might be clear in which case all these symptoms will be put down to post haemorrhage stuff.
I am already on gabapentine for pain management and amatriptyline at night to help me sleep and prevent migraines as I now get horrific migraines that have landed me in hospital twice. I know this is a stupid question but the tablets won’t affect the results will they? I almost want it to be MS so I can understand it better. I am defintly noticing periods of more severe symptoms and others with hardly anything at all. My post haemorrhage stuff is constant and so easier for me to work with and monitor if it gets worse. If the problem isn’t MS then I find the idea of random symptoms coming and going for no reason much more difficult to deal with. Plus I struggle to explain symptoms or remember how long a problem has been happening, I am starting to struggle with all the questions I keep asking.
Anyway, this is a bit epic. I think I am so anxious waiting for the phone to ring and dreading it too. They needed to confirm I can even have an MRI as I had brain surgery to clip the anuyrism and if the metal isn’t compatible it could kill me. Otherwise it is a lumber puncture which I am terrified of and also very reluctant to have done because of my back and bone disease stuff.
OK I will shut up now. Congratulations if you made it to the end!