Sativex

Everyday living
1

Hi everyone hope you can give some advice on getting Sativex when the PCT says NO?!!

Any help is appreciated for and against

Thanks Nonii

2

Hi It`s very common to be refused sativex on the NHS. A few GPs do prescribe it for their patients.

Dunno if you can get it privately via E med…who arrange LDN for many folk here/

luv Pollx

3

You could try asking for help from the MS campaigns team. They are always interested to hear of such problems.

Wendy x

4

Hi Nonii

My GP funded my Sativex from there own budget as my Health authority does not allow it.

I was backed by my Rehab consultant for the original script and was placed on the trial. I should say that my GP and my care team all worked very close together so it was not difficult. For that I will be forever grateful.

However

I have just moved into an adapted property and as a result I have moved GP’s.

I went to the new GP last week and they said they would not prescribe it. In fact the Dr said “my computer has a traffic light system for prescribing drugs. Your sativex traffic light is black” “not good then” “no, it means I am unable to even request it”

So currently I am waiting for a meeting of the practice partners to decide if they will fund it or if I have to do without.

Seeing I was part of the trial I am not to chuffed but as is anything big Pharma, they do charge the most extortionate amounts.

I would get a recommendation from your consultant and have an appointment with the senior practice GP and see what they say.

Good Luck

5

I had sativex on a private prescription for about 1 1/2 years (cost over £200 a go) until I had an adverse reaction and had to come off it.

6

Hi , If u can not get it on the NHS talk to your neuro/ms nurse and ask if you can get it private, thats what i did.

Bal