I thought that some of you on here would be interested in my story about my quest to get Sativex and the most amazing day that I had last week in hospital.
I have been trying to get Sativex on the NHS for some time now as I wanted to see if it could help with nerve pain and spasm in PPMS. Last year I decided to get a private script and buy it from E Med and found that it really worked for me. The cost is prohibitive so I continued to look to the NHS for help and finally found a London consultant who was able to prescribe it. My GP wrote a referral over a year ago and I saw the consultant who decided that before he would consider giving me Sativex he would need to put me through all the MS diagnostic tests that I had previously with my own consultant in 2006. Anyway it was confirmed that the diagnosis was correct and last week I finally got to see him again. To my delight he wrote a prescription for Sativex out in front of me and also said that he wanted me to try LDN as well which isn’t available on the NHS but he will send me a private script for. He said that I could pick up the Sativex at the hospital pharmacy that day. I went to the pharmacy to be told that they didn’t keep it in stock and to cut a long story short I had to see the hospital MS nurse who told me that I would need a physio referral from my GP to prove that I was in need of Sativex to justify the prescription. I was amazed that a nurse could over rule the decision of a consultant.!!! My local physio service has a 10 week wait time but I’m hoping to jump in when a cancellation is made. I had the prescription in my hands for a brief moment and now I 'm back to square on with my GP again. ABSOLUTELY AMAZING!!! I still can’t believe that it happened like that!!!