I am going to see yet another Neurologist tomorrow - think this is the 15th to date (could be more). I have a long history of neuro conditions (see profile) and have been suffering with MS like symptoms for over seven years, which have progressively got worse over the past twelve months, with recurring spine spasms, which debilitates and takes me off my feet for up to two weeks at a time. The pain is constant; the latest symptom discovered three weeks ago: I was in work, and when I tried to take hold of a pen, I couldn’t get a grip of it. My finger tips were especially weird because they had no sensation in them, and are cold to the tip to touch. They have not improved! almost feels like my hand doesn’t belong to me - pretty much the same as my whole body when it decides to ‘pack up’ on me.
I haven’t been dx as yet, and it puzzles me because people on here appear to have different symptoms etc. I work with someone who has MS, and she is as fit as a fiddle…walks beter than me; looks healthy, and doesn’t have any relapses. Sot it makes em wonder how some manage to get easily dx with little symptoms that have only recently emerged, and yet some, like myself struggle for years and don’t feel heard by Neurologists?
My results tomorrow is from a full body scan (contrast dye). I am struggling today, and am in quite a bit of pain. The trigger being due to lying on the Dentists chair while I had a tooth extracted, so the different chair that my back isn’t used to has caused my spine to go into spasm again, and the disks are clearly protruding again.
I am just making my notes again for tomorrow, and am not particularly looking forward to the appointment, because I always feel like I am explaining pseudo symptoms - almost like I have a flashing sign saying “Liar” on my forehead.
My GP as per had splinters up his backside, and when I rang him to ask for advise re tomorrow all he could say was, “ask them what they would do differently compared to what they are doing now”. Not exactly helpful because I always end up asking them that anyway! We will see. My list consists of a total of, 44 symptoms for him to get his teeth in to.
My main focus is not to rush my time with him. I always feel like I have to hurry because the next person is waiting. Pathetic really! but it has clealry been a regular transference from previous neurologists.
Fingers crossed that I get a definate answer to this body that doesn’t feel like mine anymore :-/