Hi Sharon
I’m in more or less the same position as you, work-wise. I’m currently a limbo-lander and am experiencing a huge amount of humiliation and belittling by my Line Manager who makes fun of me in front of everyone and points out all my mistakes, which are caused by cognitive impairment problems. He also shouts down the back of my neck when I’m on the phone to humiliate me.
Unfortunately the stress makes me worse! They know I am being investigated for an undiagnosed neurological condition but have insisted that I now work full-time in order to complete all my tasks, as I have slowed down. (I work 9 till 3 every day and have done for last 4 years when symptoms escalated). I get the distinct feeling that they are trying to get rid of me. The company I work for, although a global company with 200 employees in UK, have NO personnel department, and NO Occ Health, so I have no-one in the company to turn to. As I am a limbolander I have no rights under Disablilty Law.
I have not yet returned to work since Christmas as I suffered what I believe to be a really bad relapse of symptoms two days before Christmas and ended up collapsing on Christmas Day. I had unbelievable fatigue, dizziness, numb finger tips, pins and needles in right leg and severe and sudden bowel incontinence. All these things I have had before but this time I also had pain in the back of my right eye and loss of vision. I ended up being taken to casualty and have now been referred to an Opthalmic Consultant next week. I have suffered bowel incontinence since 1996, only two or three times a year but it’s becoming more common and what I am afraid of is losing control at work - the humiliation would be unbearable and would be the end for me. Fortunately I have the opposite problem with my bladder in that I cannot always tell when to open it.
At the moment I do not know how to cope with the problems at work and know that I will be made to suffer next week when I return. There is no system in place for covering my work when I am off. I always take my annual leave as half days throughout the year in order to cover as much of the school holidays as possible to be with my son (I am divorced with no family here). Therefore, for me to be off sick for a week will have really caused upset as I have always struggled on in the past.
I feel that I shouldn’t just pack it in as I actually love what I do (fleet management). Also, as I am single with no family here the job is everything to my life and if it was right it could really enhance my life, but as it is it is causing more stress and unhappiness.
I am hopeful for a diagnosis this year which may make my employers have a bit more tolerance and understanding but it’s possibly not going to happen.
Also, how do we go about moving jobs within this scenario? I asked my GP - when going for interviews do I confess to an undiagnosed neuro condition and then I wouldn’t get the job, or keep quiet and if I get the job and then when symptoms begin to manifest themselves get accused of deceit and probably sacked? My GP did not have an answer!
The situation is intolerable and I can totally empathise with you. I hope your situation improves soon.
Kind regards
(Huge apologies for long text)
Dianne