Hi everyone. Has anyone experienced finger and toe movements/twitching as an MS symptom? It’s constant for me on one side right now (the affected side) and I’m not sure if it’s nerve related or just stress and tiredness. I don’t Google, because I go down the rabbit hole when I do… prefer to hear from real humans 
my gp has said it’s worth noting new symptoms while I wait for diagnosis tbc, not sure this connected or not. Cheers
Hi
I haven’t had finger and toe twitches but have had upper lip twitches - I could be an Elvis impersonator!
Any strange symptoms are likely to be neurological - it’s a whole world of strange!
Good luck xx
Thanks Carole - that make me LOL as well as being helpful
The problem with odd symptoms is that we all experience our own version of MS. I’ve had odd times of twitching foot or fingers, but not constant.
The temptation is to recognise symptoms that one person with diagnosed MS also has. But this doesn’t mean your own twitching digits either does or does not make it more likely to be MS.
(Btw, Carole lives in her own world of ‘strange’! It made me laugh too! Carole = Elvis )
Sue
Thanks Sue. I hear you, the temptation to look at everything going on in the body as possible MS symptoms is strong! My strongest motive for asking is down to one of my parents having early onset Parkinsons and suffering a lot with jerks, tremors and spasms. These twitches I’m experiencing don’t look the same to me but they stir up fear that’s probably out of proportion. I feel so little control over my body at the moment I think I’m trying to compensate by finding a ‘reason’ and logic for things. My MRI is coming up soon, I’m counting the days.
I also get a twitchy top lip on one’s side and my left eyebrow drops too when this happens. Some days worse than others. Get leg twitching and kicking too. All fun and games
I knew nothing about MS up to recently but wow, hearing people’s stories it sounds relentless. I’m keeping faith that whatever is happening to me is a one off and will get better but new things keep manifesting. Twitching has now stopped completely and instead I’ve now got full blown tinnitus and a leg that feels like it’s going to explode. I keep looking down at it expecting it to have swollen up like a balloon, it feels like the skin is stretching too tight. Whatever this is, it is determined to test me to my limits.
I too am experiencing tinnitus for the first time. It comes and goes, but is coming more frequently…and massive brain fod, which brings along with it anxiety. I also notice a buzzing in my head when there is complete silence…like the silence is too much. Strange
I get body jerks twitching. Not as bad as it used to be though. It mainly happens when I am bed at night. I get shaky hands a lot though and my hand wobbles when I pick things up. One of these days I am going to spill my coffee everywhere!
Thanks Deb. I mentioned the movements to my GP. He asked a few questions about the pattern, where they are etc and he said they are in line with my other symptoms which he explained are all upper motor. That was helpful in itself as when I looked into upper motor lesions it made me realise my symptoms are not a random bunch, they tend to go together. I asked about propranolol as a family member is prescribed It for tremors and he said no because MS is suspected and that’s not a treatment prescribed - my MRI is next week so hopefully will have some answers soonish. I’ve noticed night time jerks in my right leg too but have had that for years occasionally so didn’t think to mention.
Hi Seamus. I can relate to that but I’m not sure if some of the things going on are neurological or extreme tiredness and worry - it’s hard to know what to assign things too. But constant worries and thoughts about a possible long term condition is in itself a stress on the body I guess. I’m at a point where I’m accepting of whatever comes, I just want an end to this limbo…
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i also get restless legs when I am in bed sometimes and a friend of mine who has had MS for a lot loner than I have suggested I take magnesium but that doesn’t seem to make much difference.