I have been very lucky with having very few relapses.
Now I think I’m having one.
The reasons are the MS hug (which I has during my diagnosis) and cognitive problems (which I haven’t had before).
I’m in no rush for steroids and it’s difficult to get in touch with my MS nurse. Anyway my annual MS review is due in March and will be a phone consultation.
sorry but I don’t know why I began this post.
I do know actually, it’s because replies from you wonderful people make me feel less alone.
So sorry to hear this. I have problems too. Even though there was only the two of us here yesterday. It all got too much. I ended up shouting and in tears. Then the apologies start and more tears. Great eh? I just find everyday things too much at times. Simple everyday things. Dogs in my way. Being asked questions. I just needed some peace. So yes you are not alone. I have a hell of a lot of pain at the moment. I feel like a k ife is being wedged in my ribs for one… Sending hugs and hoping it gets better. Anne Xx
I feel for you i started with a very bad one 4 week ago and its reaching its peak now,i feel worse each day.I am stuck in bed and have been since start.Luckily my partner looks after me very well i have no choice but to be in bed he mad the xmas dinner yesterday for us thankfully.Hope you feel better soon.Im having really bad cognitive issues too feel like i av dementia its that bad.These days my relapses last longer too so i know im going to be bad until spring.grrrrrrr.
Oh isn’t MS a s0dding git? Relapses, progression, nasty horrible cognitive symptoms.
The bloody ‘hug’ needs a new name. What about Rib Crusher?
We could have a competition, who can think of the most descriptive names (preferably one that’ll get past the mods!!) for the horrible symptoms, not just of the rib squeezing devil. Maybe the cognitive symptoms that so many of us have? There’s more than just Brain Fog (although that’s always been a good one!!) There’s the screaming argumentative devil that lives inside some of us, just ready to sneak out and attack our nearest and dearest. And the ‘oh what’s it called, I’ve forgotten the word’ memory thief. Not to mention the utter confusion some of us experience from time to time, the cognitive combination of fatigue, memory theft, forgetfulness, severe headaches and other brain aches.
Spasms and spasticity could do with new names, optic neuritis, neuropathic pain, what about Trigeminal neuralgia? (That’s one that definitely needs a new name!) Fatigue needs a more descriptive name so it doesn’t get stolen by people who don’t know what it’s like!
Anything else? Foot drop, numbness, fingers forgetting what they’re there for?
I knew I wouldn’t feel so alone when I started this post.
You are all wonderful and none of you deserve this abomination (thanks cracowian for preventing me from that incessant wordsearch). The first words that come to mind are filthy!
Ssssue, I’ll try to come up with more detailed descriptions of the MS hug and cognitive problems.
Mega Satanic hug? It certainly feels like the devil’s work.
God sue you hit nailon the head with all of the above. I care for my hubby think he’s had, Ms all our married life. 26 years. He and I get sooo p***Ed off with how ms affects our lives. Yes we, argue due to frustration and I believe personality change due to ms. ANYONE AGREE
Yes. I agree, some of it’s frustration due to the ways our brains don’t work as they once did. Some of its sheer irritation due to the fact that we are so dependent. But some of it is certainly due to the changes in our brains. We are sometimes unable to keep a wall up between our internal infernal annoyance and other people. Usually the ones who least deserve it.
You are doing a fabulous job Polly. And your husband is surely doing all he can to be nice and polite and grateful (grrr, how we hate having to be grateful!) for the help you give him. The number of times I shout at my lovely husband because he’s not pulling up my pants or my socks quite ‘correctly’…