Forum

1st relapse

Hi everyone I have spoken to my nurse this afternoon and she has told me I am having a relapse. I got off the phone from her and just broke down in tears I was not expecting this to happen so soon. My first symptons started at the beginning of the year and was diagnosed at the back end of July. I am really wondering how soon after diagnosis did everybody else have a relapse and also how long do they last. I feel so weak and so rough and I really want to get off this train ride as I am really not liking it! Thanks for any advice it is much appreciated. xxx

hiya

noticed u have had no replies…

i had 11 attacks in first 2 years…but comparing ur ms to others is pointless i am afraid to say. i can understand u wanting to get some idea of others experiences but they wont benefit YOU. tho reassurance that u r not alone oftens helps.

you cant get off the train, i will hold ur hand if u want tho…we can share the sick bag!

i hope u feel stronger soon. ellie x

My next relapse after diagnosis was about a year later. I hadn’t told anyone other than Mr Val and work about my diagnosis but that relapse was a good thing because it sort of forced me to go public!

Can’t remember how long it lasted, not long I don’t think but it was the start of many relapses that only stopped when I got onto Betaferon which I’ve happily been on for the last ten years. I expect your experience of relapses will be different though.

Hope things look up for you soon.

Hi Hopeful,

My first (undiagnosed) symptoms happened in my early 20s and I didn’t have another one for 30 years when I was finally diagnosed! Have now had 4 in the last 3 years. You can never tell Chick, we’re all individual. Hang on in there and I hope you start feeling better soon.

Hugs. xx