Hi all I think I am having a terrible relapse. Does anyone else find it hard to describe to your family? I have been taking Gabapentin but I feel like a complete Zombie. Has anyone else felt this ? I really can’t take this! I have had enough. Sorry to put a downer on Xmas eve . Julie xx
hi julie
i sent for the rrms booklet from this site.
it explains clearly with diagrams how our immune system attacks the myelin.
once my family had read it they could understand what i was on about.
have you got any new symptoms?
or is it all just getting too much for you to cope with?
many medications have zombie side effects, i take as few as i can.
is it your family that don’t understand?
they will eventually.
anyway i’m hoping this isn’t a relapse.
try to enjoy a little bit of christmas.
carole x
I sent for them too but they just don’t understand. It has all got too much xx
hi julie
would you consider an anti depressant?
please ask your gp.
it’s a great big deal to be diagnosed with this pig of a disease at your young age.
have you looked where your nearest ms therapy centre is.
they are great places where you can chat to others going through the same as you.
best is when someone has had your symptoms and got them under control. they can tell you what to ask your gp for.
maybe your mum could go with you, she could have a massage whilst you natter.
that would really help her to understand what you are going through.
carole x
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Hi Julie sorry to hear you are relapsing - in June after five years on Tysabri had to come off it as I became JCV +. This week I started relapsing again - so fed up. I have had ms for over 10 years and when I told my daughter she said I needed to go to the gym more often and my husband said it was obviously caused by the same virus as he had - they are living in denial. As much as I wish they could understand how it affects me I do recognise that this is not what they want for me and they just want me to be better. How do you explain to someone your legs wont move - it’s all in my head!!! I know I say it is 
I havent taken gabapentin so can’t give any useful insights - hope you are feeling much better and can enjoy restin and watching rubbish telly with a bo of chocs by your side.
Best wishes
Helenxx
Thank you both. Carole my step mum lives in Dorset and would come is she wasn’t so far away (I’m in Birmingham) I have joined lots of support groups for my local area. The doctor has put me on anti depressants and I am seeing a specialist in January. Helen…my partner is great, he does EVERYTHING for me but still does not get how crap of feel. I think he is just fed up of hearing me moan. I used to smile and have fun but I am now this sobbing mess. All the ‘doing’ for me is his way of coping I guess. xx
I was given gabapentin at my very first relapse. Horrible stuff. Apart from making me like a complete zombie, they had a terrible effect on my mood. I was anxious and depressed anyway and they just screwed with my brain. I avoid all these drugs now like the plague and just let nature take its course as far as the relapse is concerned. Don’t underestimate the power of these drugs. Maybe you do need an antibdepressant, or maybe if you came off the gabapentin you would feel better. Only you will know. Feel better soon xx
I’ve recently been diagnosed with Remittance Relapsing MS. I’m just getting over a relapse that I’ve taken after being very ill before Christmas. At present I’ve taken time off from work. Can anyone let me know how long they wait before returning back? Also I’ve only started my treatment of Tecfidera, which has some awful side affects.
My MS explained to me about a zombie relapse, and it can be worse than a regular relapse. When I was sick before Christmas I was unable to leave my bed. As much as I want to carry on, and try to pretend I’m “fit” to do everything, sometimes it’s impossible.