Hi, my name is Bev I live in Leeds, 49 years young and have secondary progressive MS oh and another thing… I am a virgin forum user 
and don’t know where to find the right place to look. After a 15 week stay in hospital and 6 weeks reablement I’m now in a position where I find myself struggling to improve physically. Am I expecting too much too soon!!! I went into A&E beginning of Jan with extreme spasticity and stiffness in both legs, up to then I had been (only) just getting around with crutches. I now find myself wheelchair bound but able to stand to a Zimmer frame and manage 1 or 2 steps… I know it sounds a bit weak and I feel like it’s me moaning about not a great deal… But emotionally I’m a WRECK!!! Any pointers in the right direction would be wonderful
Mmm, right, let me see if I can suggest anything. I would think the OT has been to assess your environs re safety and ease of use, yeh?
maybe you could ask to be assessed for Direct Payments, to help you with personal care, like I have.
Gosh, you were in dock a long time…hope you feel better now, but take it steady eh?
Physio should also be coming to try to get you stronger and hopefully back to the ctrutches.
How do you feel about being in a wheelie? 8 yrs now for me.it takes some adjusting to, but it was right for me due to many, dangerous falls.
luv Pollx
Hello perrydog,
Poor you, I thought my 7 weeks in hospital was bad enough so I do have an inkling of how you are feeling. You don’t mention if you have friends or family who can help you adjust. As Poll has said you should be having a follow up by OT and physio’s, but if you haven’t see your gp and ask for help.
I do hope you feel better soon, sending ((((hugs))))
Janet
x
Cheers both!!! don’t know how to reply to u individually and using iPad which is also new… Poll, being in a ‘wheelie’ is a whole new world n I have to admit I’m more than a bit scared but I guess u were too? Janet … As for friends I think I’ve kinda cut myself off for them … And as for family, well I never wanted to worry them with anything so have kept it all inside. I,ve never realy talked about my probs over the years (12 years diagnosed) as this is the first major blip I’ve had… I am on Prozac… But just crying all the time … I think I’m just trying to come to terms with something I’ve ignored in the past … R u both on here a lot??? bev xxx
Hello bev,
You need your friends, the real friends that is, and you need your family so they can understand the problems you face. You would be surprised how much people want to help you, tell your family and give them a chance, I think you will be surprised how much better you will feel by letting it all come tumbling out. Ok they won’t know what the pain is like but sharing your experience will enable you to except what is happening to you. Talk to people, openly about it, you’d be surprised how much better you will feel. Face up to it, except it and get on with life. I’ve has MS for over 30 years now and have now reached the SPMS but I am living my life and I’m happy. PM me if you want to chat. Yes I’m on here most days, the support you get is fantastic, the people on here are great.You can moan, groan and even rant we will understand.
Sending you (((hugs)))
Janet
x
Hi Bev,
I spent many months in hospital and came out in a wheelchair. i dont know your circumstances ie are u alone or have a partner etc. but coming out after such a long time is a shock. In hospital your environment and all the equipment u need is to hand and you have peopleto helpp you. When you come home different to how you went in you need time to adapt. I presume you were assessed in your home before discharge and that you have a banana board(my life saviour) raised toilet seats etc. It took time Bev to adjust but I did. I had some home physio this is a must to keep whats working working if you know what I mean. I couldnt stand initially but gradually managed to progress to a zimmer frame. I eventually went back to using my scooter outside when I got some strength back and confidence. Six weeks is very very early you are expecting too much of yourself take each day as it comes. I was an emotional wreck as well felt I couldnt do anything but you can and you will in time. Try and do some gentle exercises in your chair every day ask physio for advise or get your gp to get them to come to you. Ask for help from friends and family that one Im bad on. Ring some old friends for a chat or join your local ms group in time when you are ready some have transport. If you want a chat or things i did let me know. It will be a slow process but you could still improve its early days. Take care ps im also 49 years young!!
And thanks to Christine also… I think I’m still a little indoctrinated with hospital rules and unfortunately the access to NHS physio is in short supply in this area so will prob have to resort to private physio … So onwards and upwards eh!!! Xxx
Hi
Bev, hope you have improved since you posted this message, i live in Leeds,which hospital were you in ?
jaki xx
Undergoing a rehab is so hard. You need your family’s support and you cooperation for it to be effective.