After having a rougher time than usual (and that is always hard, as you a know) we decided my hubby needs to take a break…from me!!!
So in the easter hols, he will be meeting up with our daughter and 2 granddaughters, on a camp site in Cheshire.
I have`nt been too good for a few months, with things like my spc letting me down, bowels with a mind of their own and quite a nasty scalding incident, plus the general difficult everyday stuff.
I rang my Direct Payments manager and told her what`s been happening. She said it woud be a good idea for my hard pressed hubby to take a break. She okayed the payment for carers to be with me 24/7, as I just cant be left alone now. Then she suggested I have my care pakage re-assessed. I told her what happened the last time I asked for re-assessment, when the socal worker who came, warned me that there was a possibility I could lose some of my present care. These words frightened me, so I decided not to persue my application.
Although I do have some fear of a re-assessment, I feel we need this before my hubby breaks down under the strain, as his rheumatoid arhtritis progresses.
Good polly you can only try and see what you get i know a break for your husband will be a good thing for him but i am sure he will worry just as much about you and ring you all the time . Hope things get a bit better for you and the burnt chest isnt too painful try to keep it moisturised not a scented one though. Take care
We are feeling a bit better now. But we did have words yesterday, about how he can sometimes make me feel such a nuisance when asking for help. I told him that I had wet myself and darent ask for help, as he was dealing with the dog and getting aireated!
I coped until later in the day.
Looking forward to our space apart I think…both of us!
I do know where you are coming from, as when you are together 24\7 sometimes it gets too much, even though we love our other halves. Unless people have been in this situation it is difficult to understand, and you sound like me, I get fed up asking for help, asit can make you feeI like a nuisance.
I am sure a break will be good for both if you, keep smiling Poll, as it hides a multitude of feelings, but I do so understand.
Hi poll hope things ease off soon for you & come back to a pace you can cope with & that in the assessment they see sense & give you everything the full package as you deserve everything & more in my book & if you ever need to let off feel free to curse swear or shout to my inbox just put don’t read in the title
