Random pains

New diagnosis and before diagnosis
1

Hi!

I have not posted on here for a while and have tried to just get on with things feeling lucky that I only have sensory issues (pins n needles, loss of sense of feeling, buzzing bees under the skin) and fatigue (accompanied by “wuzzy head”).

Every now and then I have a real dip and go into self pity mode… so here i am with 2 (or more) questions:

Over Chritsmas, I had a real pain in my upper rt arm which felt like I had been over doing the weight training (no - I don’t do weight training) I couldn’t raise my arm to take tshirt off, lift things or undo jars etc. This lasted for 2 days and then I was fine again. was this a relapse? I considered calling MS nurse but it was over in 2 days… should I have let her know?

After this incidient, I had 4 days of feeling really back to normal - not tired or lethargic - my get up and go had returned and I felt human again (still with pins n needles etc - but I don’t think they’re ever gonna go (have had them 18 months now))

Back to work(after 2 wks hols) and back to fatigue and wuzzy head, worse P&S and severe bouts of buzzy bees etc. plus depression cos I had persuaded myself that I was maybe getting better (guess this is the nature of MS?.)

My other question is about random pains. - Since August, I have been getting them a couple or more times a day. They come in different parts of the body (little toe, calf, shin, bottom, thigh, wrist, fingers, palm of hand, forearm). It is like a jabbing pain that sometimes takes your breath away and ther are three or four in a row before they stop. I mentioned them to my GP in August who said they were nothing to do with MS - then I mentioned them to MS nurse and she said they WERE to do with MS.

Does anyone else have these random pains?

Is there anyone with similar symptoms to me? ( I struggle with the fact that these aren’t truly bad symptoms for MS (thankfully) so I shouldn’t be fussing) If so, do you take DMDs? My neuro has said there is no real point in taking them until I have a relapse (which I am unsure if I have had yet) but that I can have them if I want. MS nurse says it is up to me.

I am truely confused and in a battle with myself over this issue - in one of those dark phases - would really value some advice on relapse situation and any thoughts regarding other issues.

Sorry for long message - Am seeing Neuro mid feb and just want to get my head round this so I don’t just accept what he says or, on the other hand, make a fuss over nothing.

Thanks

TF x

2

HI TF - I get a stabbing pain in my hip/lower back area. I can be walking along thinking ‘I don’t feel too bad today’ then the pain hits, causing a sharp intake of breath and I have to stop or I feel like I would fall over! Bit embarrassing when you are just passing someone in the street . I hobble on my way after that 'cause it feels like it could happen again any time - and my walking gets slower and slower - and I’m jolly glad to sit down when I get back indoors. There are occasions when I get a sudden random pain in other places, but it’s mainly my lower back/hip area. For me I don’t think this is a relapse, but it could be for you 'cause we are all different. I only got my DX a few weeks ago, so I’m a newbie, but I’m sure that others with more experience will come along soon.

Take care and be kind to yourself,

Hazel x

3

Random stabbing / shooting pains are very common in MS. It sounds like you would benefit from a neuropathic painkiller or an increase in your dose if you are already on one. It would also help your pins & needles and buzzing. The arm pain might have been MS, but it could have been a trapped nerve or a pulled muscle or something - difficult to tell :frowning: As far as DMDs go, I’m a believer in using whatever’s available to keep MS in check, so if I were you, I’d be on a DMD. But it’s a personal choice and some people are very anti-drugs. However, DMDs work best when started before disability has begun so waiting until someone’s MS has got “bad enough” rather defeats the purpose. They are preventative, not curative. Karen x

4

Hello

I am exactly the same symptoms, I was diagnosed Monday 27 Jan, and now I am waiting to see a MS specialist! Hope it doesn’t take too long, I am having random pains a lot throughout the day and numbness moving around my body all day. I have so many questions I need answering  this started 2012 and the symptoms and more or less there all the time and are getting worse? Anyone have any idea what type of MS this is. When diagnosed they didn’t really give me much information

Thanks

5

Hi TF, I’m not diagnosed or been given any hint to what might be wrong (well, he did reel off a long list but I can’t remember them!), but recently had head and spine MRI to see if anything comes up. But recently I also keep getting these random pains. Yesterday I had them in my arm/elbow, then in my foot, then one in my thigh right near the top of my leg which was so painful my leg went into a small spasm/twitch thing. I also get something similar to you with my arms where it feels like I’ve been exercising and now my muscles ache. Except when people exercise their muscles only tend to ache or hurt when they move or use the muscle, but when my arms are bad I feel the ache and pain constantly - get this in my legs too. In regards to telling MS nurse, the only thing I’d say is we aren’t the professionals and we can’t necessarily know if something is definitely MS or not, even if we do know the main symptoms etc. It can’t hurt telling them what’s going on, but it may “hurt” not telling them, if that makes sense? Wheeze

6

Hi i get sharp stabbing pains in my ankles which make me stop walking they last about 10 mins then go.

7

Hi I to have these random shooting pains I call them fizzy pains lol ( in my mind they’re how I’d imagine a rocket firework shooting up n the fizzy crackle after it explodes lol) n I get them everywhere n at any time I’m not Dx’d after many yrs but show several symptoms on/off throughout the years lou :slight_smile:

8

Hi,

Not diagnosed, Following 2 MRI’s which show brain and spinal lesions last year, I got date for my lumbar puncture today. I have been having similar pain in my both arms. I could only explain it as my arms being too short when I reach for anything high or low causing stretching of all the tendons in my shoulders. It’s so painful like a sharp electric shock. I have also been getting similar pain in areas on the top of my scalp. There has also been a pain in my right buttock which then leads to right leg numbness and strange walking/gait.

Melanie