Hi everyone. I’m not sure if I’m posting in the correct place and I’m not sure if any of this will make sense but here goes!
I am in what seems like the very early stages of a diagnosis and am looking for a bit of advice. It’s a very long story but I shall try and do the ‘short and sweet’ version.
It all started last August with a hospital admission, from the doctors surgery, for a suspected bleed on the brain/stroke. Bloods and MRI done which were all clear. Thankfully I had neither of those and the rather dismissive doctor said it was psychosomatic. Feeling rather embarrassed and slightly angry I was sent home. From then until February I had a weird list of symptoms;
- tingling and numbness in arms & legs
- pains in elbow/wrist
- Body jolts whilst sleeping
- balance problems/dizziness
- cold hands and feet
- Difficulty with prolonged use of right hand
Numerous visits to the doctors came up with nothing other than a bit of arthritis in my neck after an X-ray.
End of February arrives and I end up in hospital again, and again with a suspected stroke, however this time my symptoms were accompanied with a pressure/tightness around my chest. This time I was diagnosed with a migraine. Since then Ive gained new symptoms
- Lightheadedness (worse when doing light exercise)
- Swollen toes, fingers
- Itchy legs
- tight/heavy chest for differing lengths of time
- Twitching eye
- Tingling tongue
- Needing the loo more often
I honestly started to think I was going mad! My doc seemed to think migraine was a good diagnosis and advised me to buy migraine tablets. I think she was staring to think I was a hypochondriac and to be honest, I started to feel like one!!! I avoided going to the doctors for weeks and even stopped having conversations with people about how I was feeling. When I felt unwell I would go into another room or hide in the toilets until I could compose myself enough. It actually got quite lonely for a time. (Sob story, sorry!)
However, last week I decided enough was enough. I’m a fairly level headed person who works hard and has three young children, the youngest of which was born during all of this. I’ve gone from running about like a lunatic, working, gardening, exercising and generally never sitting still, to someone who can barely make it to lunch time without having to lay down for a few hours because I’m literally exhausted!!
So, in a moment of madness I went to the doctors and saw a different GP… I reeled off the list and she looked at my history… to my amazement she seemed rather cross at my other doctor and wasn’t really shy in saying so! She has booked a cervical and thoracic MRI, a chest X-ray, a weird and wonderful array of bloods and said that a lumbar puncture could be next on the list. I was a bit taken aback and asked what she was thinking… she said that it could be a number of things and we could eliminate a lot of them by doing these tests. However, she said MS was the first thing she thought of as I was listing my symptoms.
Anyway, my questions are, is she barking up the wrong tree and has she just put two and two together and got 5?
Could it be MS even with a clear MRI that I had in Feb and Aug?
From what I’ve gathered, this could be a long road to discovery, whatever the discovery may be.
So after my NOT so ‘short and sweet’ post, I shall leave it there. Any advice, similar symptoms, anything, would be gratefully received. Thank you to anyone who has the time and patience to read my waffle. And please, if I’m going mad then feel free to say so!!
Many thanks, take care, Jay.
ps, can I add that I’m 31yrs old, not sure if that makes a difference!