Hello all! I’m new to this forum, although I’ve found it a real help looking through previous posts. I’m a 32 year old female, going through the pain of waiting for an MRI so am venting here! Hope you don’t mind…
I went to the GP yesterday and have been referred to a neurologist for an MRI due to suspected MS symptoms. A few months ago, my pinky finger on my right hand went sort of numb for a few weeks (I would bite my left finger to compare the feeling to my right to make sure I wasn’t going do-lally lol). I also had mild tingling in my right foot and right hand. I didn’t think much of it at the time as seemed like a small thing. I also had mild blurred vision and a few dizzy spells (vertigo-like spinning) over the course of a few weeks but I was coming off the mini pill and had a cold so chalked them down to that.
I went on holiday last month and my boyfriend and I travelled overnight to get to our destination so I didn’t get any sleep. We had a few hours kip on the beach the next day waiting for our apartment to be ready for check in. By the evening I was hot and tired. I was watching the sunset when the waves in the sea started to blur and sparkle in my right eye. I’ve had migraines with aura a couple of times before. Although this one was a bit different to my usual - I had blind spots and small flashes rather than my usual “classic” aura crescent and colours - I quickly figured it must be another migraine. I went for a lie down, a bit confused but hoping I could sleep the upcoming headache off.
But instead I got quite disorientated, stood up and felt agitated with tingling starting in my right arm and leg and spreading to my face and mouth and felt numb. I tried to speak. In my head I was trying to say to my poor, worried boyfriend “I’m not sure if it is a migraine”, but the words that came out were all incoherent - I just kept repeating the word “eyebrow” and gobbledygook! Within 30 minutes the episode finished and I started to get a throbbing headache. I was relieved that it didn’t seem to be a stroke but actually a very, very bad migraine episode. However the tingling sensation in my right hand and foot was quite pronounced and continued on and off for the next few weeks (still have it mildly and intermittently now) and as soon as I got back I booked in with my GP to make sure everything was OK.
I thought that MS would be a potential area of focus as my sister has relapsing-remitting MS. However, I also knew there were/are lots of other possibilities, such as migraine-related issues. However, I was pretty shocked that my GP was very concerned straight off the bat, part of me thought it would all be chalked up to something small and I’d be on my way, even though there were obviously neurological symptoms. I went through my symptoms, the episode on holiday and I had some short sight/feel tests (which seemed to go ok).
My GP was pretty much singularly suspicious of MS and has sent an urgent referral letter to neurology for a brain scan (which I still suspect I will have to wait quite a while for, as I live in an oversubscribed London borough). I was advised to make another appointment with him to talk through what MS is, my concerns etc. I’m pretty shaken by how seriously he took it, and how focussed on it being suspected MS, although obviously grateful for his concern and thoroughness. I don’t think this is usual?
Sorry for the long post, I’m still a bit shocked and processing the information. For those of you who have been through this process, how did you cope with the waiting part? I don’t want to put my life on hold, but at the moment it is hard to focus on other things.