Hi guys!
First time posting and been a whirlwind of a week…
A week ago on Tuesday I was driving home and noticed my little finger on my left hand went numb. I thought maybe I had held my hand funnily whilst driving or had pinched a nerve. I have 2 young toddlers and tend to hold them on my left side.
The next day the numbness spread from my pinky finger to my whole hand and forearm, next day full arm and left side of bottom lip. The following day it also spread to half my face which I was worried about so rang the OOH service at my GP, had vitals taken and all fine so sent on my way.
The following few days were much the same symptoms but on the Sunday I was walking back from the shop and noticed that the numbness/tingling had flared up and when I tried to change my son’s nappy i couldnt work my hand to do so.
Monday I went to an emergency GP app and got sent to a bigger hospital where I had bloods taken and a CT scan of my head, both were clear. By now the numbness/tingling was down my whole left side and right lower back and thigh. I was told to come back on Wednesday to a sit and wait area for an MRI of my head and spine however there were more urgent MRIs than expected that day so sent home and advised an appointment for MRI and neurologists to be sent in the post.
So currently in the limbo-land that seems to have to alot of us and just wondering if anyone has had similar symptoms that did/didnt result in a diagnosis? I have had other symptoms recently also, about a 3 week period of migraines every 2/3 days where I would normally only get 1 every 1/2 years and feeling dizzy. I also have a weird sensation sometimes that feels like it originates from the back of my head and goes throughout my whole body but doesnt hurt just makes me feel quite lightheaded and causes a palpitation type feeling. This has been happening for a month or so, lasts for only less that 15 or so seconds each time and can happen multiple times a day.
Also today the numbness/tingling hasnt been so bad until after I got out of the bath then went back to intense and hand weakness.
Sorry for the ramble have alot of thoughts and questions falling about in my head at the moment!
Thanks in advance guys
The numb hand, arm, face, body on the left side is how my trip to diagnosis started. I thought I’d cracked my shoulder and pinched a nerve to start with but the numbness spread quickly and I was x-rayed, then MRI’d (for herniated disc/bone obstructions); then referred to neurology and MRI’d Head & Spine. They found 3 lesions in my brain - then several MRIs and 9 years later, 4 lesions showed up in my spinal cord, and I was diagnosed with MS.
I’m pretty lucky that my symptoms have been predominantly sensory, numbness, tingling, pins and needles, balance etc.
Hot/too warm baths (and Hot/Cold weather) can trigger/aggravate symptoms - it used to be one of the tests neurologists did - stick someone in a hot bath and see if their symptoms flared up. Lots of people with MS have intolerance to heat and/or cold.
The weird sensation you get several times a day could be a variation on l’Hermittes Sign - which is usually an electric shock like zap that runs down the spine and into the body/limbs. I’m on medication for this, and it now just feels like a weird pulse down my back.
Having an ice pack handy (a packet of frozen peas is perfect) to cool down your head/back of neck is essential - You can get ice cooling caps for migraine, which are really useful too, even if it looks a bit daft.
Hopefully the neurology appointment and MRI will be able to shed some light on things for you.
Hello and yes I did experience some of the same symptoms. I think it was something like 12-18 months before my MS diagnosis that I experienced a sort of numbness on one side of my face. I thought it was palsy, went to GP , had a CT scan which was all clear. That all died down and then maybe 6 months later I experienced tingling down my right arm and part of my back. I didn’t think much of it other than that it was weird. It lasted for maybe a couple of months and then went. Some 6 months after that I had optic neuritis and was sent off for an MRI which showed ‘quite a few’ lesions and that was that- I was told it’s MS.
So yes, I recognise some of your symptoms but on the other hand, I’ve absolutely no idea whether or not you can get similar symptoms as a result of conditions other than MS.
In case your mind is racing ahead and imagining an imminent life in a wheelchair, all the above was 18 - 20 years ago and , I’m still walking! Although I struggle after 10-15 minutes of steady pace walking I spent a couple of hours yesterday going up and down ladders cleaning our gutters and getting on to the flat roof of our extension to clear moss that had accumulated there ( bit tired after that but generally OK).
All the best and I hope you soon get some clear diagnosis and certainty soon.
I must admit that sounds very much like my own experience. I have only my own experience to go on of course and it’s an expert opinion you need. I hope that you make progress soon with finding out what’s going on and I am sorry that you are having a worrying time.