Hi Everyone I had my MRI on Sunday. I just called the neuro secretary to see how I should expect to get results timescales and who I should call her or my GPS office. She said I would get a letter in three weeks with my results and if I needed to have an appt made to discuss these results I would. She then said let me look you up so she did and went ummmmmm ah let me just book you in actually for the 17th February. I asked if he had seen something then she said a report has to be made he can always cancel if he don’t want to see you. Am I being paranoid why would she just change her mind and book me in only for him to cancel if he doesn’t find anything or has he possibly found something…
Can’t answer your question I’m afraid The only advice I can offer is try not to second guess things ( hard I know ) I’ve been there ,it’s horrible to wait but try and wait to see what happens when neuro looks at MRI not the secretary . Take care Gray
Hello Evie You rang the secretary. It’s not her place to discuss scan results. I understand your worried but not long to wait now. Good luck with the results 
Hi Gray, Blossom thanks for responding. I Know its not her place I just wanted her to tell me what happens next but she seemed to change her mind about things when she brought up my details so my head went into overdrive lol. I am going to take both of your advice and try and chill until my appt it’s just hard constantly hovering in my thoughts. X
It could just be that the appointment diary is getting booked up so better to pencil you in than have an extended wait. She could just be an efficient secretary (they do exist honest!)
Dinks that made me laugh I hope that you are right x
I wish someone would tel my neuros sec
hi Evie, I always try to think positively and we are all guilty of jumping to conclusions. My consultant’s secretary phoned me as there were no appointments within the time frame specified by the Dr so she put me on the cancellation waiting list. She was as good as her word and I got an appointment. I was only given a few hours notice but it worked for me. So good secretaries are out there.
Do any of you feel that in a click of the fingers your lives changed and we’re taken over by thoughts of being ill and uncertainty. Sorry for tmi, I simply went in with back pain and recurrent uti mentioned a few odd symptoms that were becoming progressively worse than wham the week after those afore mentioned symptoms took over which makes me question is it real?? Why all of a sudden did things hit me like a ton of bricks I just don’t understand how I go from ok to not ok so quickly… oh well
Dinks I think that I will wait out a couple of weeks make sure they don’t Cancel it in case he doesn’t want to see me at all then I think I will do as you suggest put me on a cancellation list xx Thank you x
Hi Evie I’m in the same position as you I haven’t rang to get results from several mri’s as I’m too much of a chicken But was scared senseless when I had letter to go and see Neuro and have been agonising over what they have found. Surely if I was ok then I would have had a letter to tell Me my results were fine?? Surely if I was ok I wouldn’t be going back to see neuro so soon… However one thing I’ve learned from being here, is that some people have follow up apps regardeless of the results, some people are rung to be told the results and some are not, some wait ages for appt and some don’t. There doesn’t seem to be a consistent way of dealing with these things, while I would say try not to worry (tell that to the nagging butterflies in my stomach) Don’t try and second guess because no one is dealt with exactly the same Today I have my follow up appt so I will be able to report back what it was all about!! I hope that kinda helps you from trying to assume All the best to you Becky Xx
[quote=“Evie1”] Do any of you feel that in a click of the fingers your lives changed and we’re taken over by thoughts of being ill and uncertainty. Sorry for tmi, I simply went in with back pain and recurrent uti mentioned a few odd symptoms that were becoming progressively worse than wham the week after those afore mentioned symptoms took over which makes me question is it real?? Why all of a sudden did things hit me like a ton of bricks I just don’t understand how I go from ok to not ok so quickly… oh well [/quote] Excellent advice from Becky. I know what you mean though Evie. I was referred initially with chronic headaches/migrane. I can honestly say the last thing on my mind was being told I would have MS. Hey ho!! 
Becky, I have decided not to assume anymore I can’t get rid of the worry but I am trying to divert my attention to other things now as soon as the over analysing creeps in haha. All the best for your appt today I hope that you get the answers and help that you need. Blossom…I need to adopt this hey Ho feeling I say it to family and work brush it off as around them I don’t want to seem it’s getting to me when really it’s eating me. But the future is not to be seen take it as it comes from now on hope you are well xx
Hi Evie I return from my neuro appt… To be told that I do not have MS! So what I want to say is this… I had several mri’s and a follow up appt all within less than four weeks! So by the time I sat in the waiting room, I had gone from haveing Ms and decided it must be a brain tumour!!! I could not have second guessed that my problem was not anywhere as serious!! The short wait was due to not being a long waiting list and the follow up was due to discuss results!! Which he likes to do in person (I also found out that The second mri was due to a cock up. When I went for the second mri, The assistant just went ‘erm’ and looked uncomfortable when I asked why I had come back for another, that made me feel really scared and I analyzed that for days)Communication is the key… !!! It really is as I said before… There is no rhyme or reason for how or when your told just the endless agony of analysing the whole thing. My words are to try and put this in perspective for… I couldn’t predict my outcome and can’t predict yours but can tell you that it may not be what you think! It maybe ok!! Do update as and when you can Becky Xx
Good news Becky x
Really good news for you becky and thankyou its very comforting to realise that sometimes things aren’t what they seem and I should be grateful that whilst I am still in the land of unknown there is still a good possibility that all will be well. Take care Evie x
Evie -I do hope things go well, I really identify with the agony of not knowing so hoping my experience will help. The amount of diseases and disorders that could apply to a variety of symptons are immense. So, I think maybe it’s a defence mechanism to think the worst possible scenerio and build it up in your head. As long as you have great people that love and care for you, their strength will support you whatever the outcome!! Blossom- hope I don’t sound too patronising as your diagnosis was not what you expected. Apologies if it does Xx
Hello Evie
When I say Hey ho, I’m not trying to make light of your feelings…or my own. I just sometimes get overwhelmed myself with it all and just think, what the heck, I can’t change it…may as well just crack on. Its just my own way of dealing with things.
Becky!! you don’t sound patronising at all, so don’t worry about that Glad to hear your good news!! all the best with finding out, what is causing your problems
Hi, new to this forum and newly ‘diagnosed’. I had a massive relapse in Oct 2013 my very first experience of one. I am 45yrs old and was suddenly faced with my right foot turning inwards inability to walk in a straight line, bobbing head and right arm. The following day I woke up and was unable to put my foot flat on the floor. Instead my foot was feeling for the floor, finally settling on tiptoe. The next day I still had the same symptoms plus a foot that then began stamping on tiptoe intermittently, being unable to turn right or left without spinning around wildly and having terrible pins and needles in both arms and head. Being very scared I visited A & E who tested for a stroke and then told me I would need a referral to Neurology. I got my GP to refer me but they were unable to see me until 23/01/14. My husband luckily has private medical care thru his work and as we were worried I might have something seriously wrong we went private. After an MRI which then showed lesions in brainstem, brain and spinal column private Neuro diagnosed MS. He sent me for contrast study MRI which then showed at least 3 areas of activity with large lesions. He then confirmed it was MS and said that NHS care would now be necessary. He prescribed steriods and forwarded reports and MRI scans electronically to the NHS neuro that I saw yesterday. It was a very annoying appt. First the neurologist asked why I was there. I explained my symptoms and told him the info had been emailed to him. He disputed this and after me refusing to accept that they had not been sent he finally checked his email. Lo and behold everything was there. He looked quickly at the scan and then told me he was referring me for lumbar puncture as he was only 80% certain it was MS. I still have the tremors and terrible weakness down my right side, hand and leg. He did the neuro tests and then questioned why I was unable to place my right foot on my left leg as though I was putting it on. I will now have to wait “quite a while to be referred for lumbar puncture and MS drug clinic*”. He then had the nerve to ask why I’d gone private!!*
(Sorry for the long rant but very upset by whole situation) xx
My goodness smiler what a time you’ve had! I wish there was something I could do or say to help i am pretty new to this and just beginning to understand the mountain we have to climb to find reasons for these frightening and life changing symptoms we have. In your case though you have already been diagnosed and it’s hard to understand having been passed back to NHS that they are querying that diagnosis it seems pretty firm to me but what would I know? Perhaps as the NHS will be the ones providing long term treatment they have to satisfy themselves that they are treating you for the right illness and also investigating further may help them learn and understand more about the signs and patterns of the disease you present with. It’s very complex isn’t it? As for asking why you went private…its blindingly obvious I have read horror stories of people waiting years all in all to finally be given a diagnosis and I am only 3 months in SCARES me immensely. I hope that you don’t have to wait too much longer but perhaps a GP could provide a referral for a lumbar puncture to your private neuro that way you could get the results quickly and then go back down to NHS road… Take care xxxx