post MRI follow up appt.

Hi Evie thank you for your kind words and replying to my rant. Sorry if I sounded ungrateful, I was very lucky to be in the position of going private and at the time my husband was concerned that I might not see Christmas as we were worried that the symptoms I had were linked to something life threatening. It came on so suddenly, I made four visits to A&E in one week as no one was sure what it was and I kept being sent from pillar to post. Being diagnosed with MS was a blessing compared to what I thought it was going to be (brain tumour) but it was still awful to hear. I hope that you are having better luck than me with your neurology team. I get to see my MS nurse at the end of Feb for assessment. He saw me for a fleeting visit in Nov but as other MS nurse is off long term sick he’s snowed under. Just glad I’ve found this forum, it’s very helpful to read other people’s experiences. I’m determined to stay positive for my own and my family’s sake. Hope you are well supported xx

You didn’t sound ungrateful. It feels like it’s been a slow process for me but compared to others it hasn’t I feel that everyone that has looked after me has been on the ball so far it’s just the system really which can’t be helped. I have my appt mid february so I am now just trying to relax I have lots of support from family aswell. It’s strange but the past few days I feel like I am coming out the other side from the things that have been causing me problems i still have quite a few symptoms but I feel like I am getting back to my old self it’s a funny feeling I think the biggest change is the extreme fatigue is starting to ease up and I feel a bit more human. Xxx

Hey Evie, sounds like your experiance is similar to mine. I had an MRI and didn’t know why, then I read about optic neuritis and spoke to a specialist… Since then I’ve had other symptoms and a diagnosis, but before that there was another MRI. I called the secretary several times and she just kept saying that the dictated letter from the specialist was waiting for her to type it up and I’d have it soon. A week later I called up again… same story, with the additional comment “no news is good news”… She was right in a way… I got a diagnosis and it’s easier knowing… It felt like forever though… Fingers crossed for your appointment, but hopefully you’ll just get an answer… For me that was the best thing. Hard to deal with it still.

Just try to relax (easier said I know)… but you cant change anything :slight_smile: I’m with Blossom… Hey ho!!

xxxx