Possible MS, not sure but definitely something going on

New diagnosis and before diagnosis
1

Hi everyone, I’m new here…I found this site by searching google for all of the symptoms i’m currently dealing with and I’m sure it has to be MS related…just looking to see if anyone else has a similar experience or any thoughts or advice…

My issues started about 4 months ago with a very weird cotton metallic taste in my mouth for a few days then some very weird skin crawling sensations primarily on my face but then progressed all over my body (arms, lets, chest, feet, genitals…madness!!)…about a month after that, the crawling sensations subsided mostly but I started feeling pain in my fingertips and toes (both sides), pain in both arms and legs, pain in my neck, pain in my left shoulder, really shaky feeling arms, hands, legs and chest. Its like my legs and arms and hands are unsteady and they want to tremor (but they don’t unless I tense up…its like my adrenaline is on max at all times…like I’m very anxious or something), on and off blurry vision, pain that alternates between both eyes (I feel pain sometimes when I move my eyes from side to side and sometimes it just aches with no movement) and these symptoms are consistent for the most part… I have had many different blood tests which were normal and a brain MRI which was also normal (but I know that normal MRI doesn’t rule out MS). Waiting on results of an EMG now…any thoughts? Should push for a MRI of my spine? Spinal Tap? It seems like my symptoms are defintely progressively getting worse…

2

You might need to buckle in for a lengthy diagnostic process. There are all sorts of things that can go wrong and MS is only one of them and the head MRI may not have excluded MS but has maybe excluded some of the others. Maybe you’ll need to give it time and see what pops up next. But of course you’re not at the end of the latest round of tests, so that might give you more info and, at the least, a view from your advisors on next steps.

3

Thanks for replying, Alison… I feel like this will be a long road to figure this out…my EMG results are normal as well but I have almost every symptom in the book (outside of bladder and bowel issues) so I can’t see how this could be something else… have you ever heard of anyone pretty much having all of the symptoms and it ended up being something else? I’ve been having symptoms none stop going into 5 months now…I think my first MRI must have been too soon for lesions to appear (although I’m really sure how that works)

1 Like
4

Personal experience of my MS is all I have, I’m afraid. I have no technical knowledge. Good luck with it all.