This all started around November 2015 where I developed sudden weakness in my left arm, with pain and numbness to my last 3 fingers (pinky, ring and middle.) I have also got tunnel vision in my left eye, and had weakness in my left leg but that has disappeared. My body aches all over and I’m so incredibly tired. For an 18 year old girl, I know this isn’t normal. I’ve been to see Neurologists who do not know what this is. I have been for 2 MRI scans for my brain and neck, and then neck and full spine. I have also had Nerve COnduction tests and these have all come back normal. (Except a small pineal cyst in my brain, but they have said its nothing to do with the symptoms I have.) I have a positive Babinski (?) reflex in my feet also.
Ive been off work for the last 7 months because of this. Does anyone have any advice, tips or similar stories?
Maybe ask for a lumbar puncture. My first MR scans were clear but a second set 18 months later showed lesions. I then had a lumbar puncture to look for a certain protein and there it was so diagnosis was confirmed. My best advise is to read up and stay in charge of your own health. The site has so much information available and the folks on this forum are lovely and informed to
best of luck and remember - you are in charge… If I can be of any help please feel free to private message me.
Hi Trev, like Laura I have had a clear MRI December last year and my symptoms (mainly permanent pins and needles) had been lessening over time but have put in a reappearance in intensity and also more places on body (including face and head) I also have minor but still annoying muscle twitches (apart from one yesterday that felt like the bottom of the right side of my face fluttered strongly i think It moved … Hoping gabapentin starts to help but this heat really isn’t in sat here buzzing anyway could you tell us what your first symptoms were? My dr. Wants to send me back to neurology but I’m stalling as I don’t think he will be as eager a third time if nothing shows …so want to leave a decent amount of time between the two…
anyways … Thanks … And sorry for hijacking your thread Laura - I wish you both the best health possible X
hi tingles. My first symptoms were numb altered sensation from waste down. This got quite uncomfortable over proceeding days. Couldn’t push to go to loo or wee easily. This started to lift after a week but remained in my feet. The feeling traveled up my torso and ended up in my hands. Feet and hands have been numb ever since. During this period I went for a private MRI scan and booked a private consultation with a neurologist. Cat me an arm and a leg :). Anyhow nothing shows up on spine MRI or a sequent nerve conduction test. This neurologist missed MS completely. I was told it was just one of those things that can’t be explained… Over the next six months I began to feel fatigue in my legs and tired. I didn’t connect the two at first but went to another GP who asked me what my symptoms where. I think she had an idea from what I said. Anyhow 1 year on from first attack I had another MRI and LP which then showed lesions. I was told these lesions don’t always show up soon after an attack so not to be fooled by an all clear MRI. I am convinced had I had help like steroids back then I may have not been left with permanent numb hands and feet. Fight for yourself and if this has helped you then I am pleased. Do private message me and let me know if I can help any further but also to let me know how you get on. All the best
Hi Trev, thank you so much for your reply, it has helped me a lot, knowing that somebody else has had this uncertainty the is it isn’t it what else could it be dilemma… Currently my feet and legs are buzzing and my hands and face are tingling … That’s what a not so hot bath has done for me! I’m lying down recouping trying to gather some energy to move after my relaxing soak lol! Anyway i can’t believe that “it is just one of those things that happens to females my age” says the neuro … I’m 38! … I try not to think about the possibilities but the constant buzz is a permanent reminder … Im still waiting for the gabapentin to do something other than make me feel like I’m a space man! And hoping a dose increase at my next appointment may start to dampen things down… Thank you for sharing your experience … I will let you know how it goes … Thank you again - Emma
anyway could you tell us what your first symptoms were? My dr. Wants to send me back to neurology but I’m stalling as I don’t think he will be as eager a third time if nothing shows …so want to leave a decent amount of time between the two…