Hey Guys, I know we all have our issues on here but how about a new route forward. God knows we all have our crosses to bear but for every bad piece of shit there is always at least one good one. Personally I have just spent the last weekend sitting in a wheelchair drumming at the Aberdeen Kilt Walk. Was absolutely brilliant. Jeezo, of course I would have preferred to have been walking but at least I was there and gave it the best shot I had. I suppose what I am saying is that we all have a positive MS tale so let’s get them on here and maybe give each other some ideas. Just a thought. What do you think?
Lovely Gary. Love this idea.
Last week I was unable to weed my large flower bed, nor divide some over grown lillies. I couldn’t lean forward from my gardening stool as it hurt my back too much. I couldn’t get down on the ground and work as I couldn’t get back up. I keeled over and hubby had to come and lift/drag me onto the nearby garden bench. Oh the tears!
Today I used his Rollator! He has been diagnosed with fibromyalgia since ten years ago and uses this for support and resting, when walking a long distance. With the brakes on, I managed to sit on it and use the garden spade! Very awkwardly I might add, but oh, the sense of achievement!!!
Heyho!! There’s a positive start. Let’s end each tale with a positive outcome. Oh, forgot to mention, at the end of the Kiltwalk I was half pissed. Oops!!!
Hahaha. Sounds good to me!
Was great right up until this morning. Sunstroke and a hangover, a lethal combination. God, sometimes isn’t it great to realise you are still alive and vital? Imagine if we didn’t have hangovers anymore?
Ah there’s a price to be paid for everything. I agree though, it’s great to feel alive. (Probably worth the hangover but best not make a habit of it.
Well, I have this philosophy, you got to die of something. As Long as it’s not old age or boredom then I am pretty much ok with that. You got to keep life interesting at the very minimum.
Sunstroke in Aberdeen! Not words often seen in the same sentence.
I hope you are feeling better.
for me talking with train station staff re customer service-made me feel useful and worthwhile and they valued my input. (i have previously won a trip to amsterdam for all the staff i worked with) but it made me feel good recalling the ‘good old days’
ps hope ur not feeling back to ‘normal’ lol
I don’t know if this is particularly uplifting, but I’m going to graduate from Manchester University this summer with an MA in healthcare ethics and law; it took me two years, and was a struggle at times because of lots of MS related issues ( including a stay in hospital for a really bad kidney infection), but I did it - with merit, to boot!!!
Im now going to apply for a place at the London School of Hygiene and Tropical Medicine for a ph.D just to keep the noggin ticking over . I think I must be nuts, but its really exiting!
(I’ll be joining the hangover club in July!!)
That is totally uplifting. Well done. You will deserve your hangover.
I have fond memories of Aberdeen as I did my degree at Robert Gordon’s and then worked in the oil industry in the late 80’s. I also met my wife in Aberdeen. My brother and his family still live there.
Glad to hear you enjoyed the kilt walk, even though you would rather have been walking. 15 years ago, I could have easily ran the distance of the kilt walk. Up until about 7 or 8 years ago, I could have walked it. Recently, it’s wheelchair or nothing. What was the route of the kilt walk?
my positive story is that I finally got an electric scooter, or quad bike as I call it, which has allowed to get back into the garden, as opposed to just being stuck in the patio. It’s great being out in the sunshine and actually doing something.
I like the cut of your jib! I have PPMS but a hopeful/cheerful attitude 99.9% of the time! It takes less energy to smile, it really does.
Take care, be safe. Mx
Last night I had a few foot spasms and they chuffin `urt!
Told hubby and he said
Well at least you know youre alive!`
It`s good to be alive!
The Kiltwalk went from Duthie Park, in the centre of Aberdeen and along a disused railway line to Banchory which is 18 miles. They then went “offroad” through forests and up endless hills for another 8 miles until they reached Potarch which is on Royal Deeside. My two sisters and my niece all did the walk which made it a bit more personal. My sisters are both in their 50’s so well done to them. Bit frustrating for me coz I would have been able to run it a few years ago but we are where we are. The weather was fantastic and I ended up pretty scarlet, ah the memories of having a full head of hair to prevent the brain being fried. As for a scooter I have been looking at one which looks like Harley Davidson for MS’ers. Hopefully be able to save for it and have endless fun on it. The drumming has made a big difference to my life. I am out every weekend at village fetes and galas. Also local parades as well as busking in town to raise funds. Probably the best and biggest gig we do is on New Year’s Eve in a coastal town about 15 miles from Aberdeen. There is usually a band playing, last year it was Human League, the year before it was Simple Minds. The village have this ancient tradition where they march through the streets swinging huge fireball baskets just before the bells at 12 and it is some sight. You should google it. Anyway, to cut a short story long, the band I play in, Dezibel Drummers, are the only entertainment on the fireball route which means we are performing in front of about 5000 people. Some buzz.
Duthie Park brings back fond memories. I worked in the restaurant and the ice cream shop one summer whilst at RG. The old railway track to Banchory is beautiful. I’ve been to the Hogmanay do at Stonehaven and it’s some sight. Must be great drumming in front of that many people.
the sun is shining here, so I’m off out to the garden on the quad bike.
Like someone else says "\i like the cut of your jib!)
YEs, it is difficult living with this disease. VEry difficult at times.
However. You have to try and keep positive.
I knit for babies and children. Not for mine. I just like doing it. KNowing that somewhere a little one has been warmed by my efforts (literally). Gives me a warm feeling. Worth the effort and all the trouble with hands etc and a stupid brain that doesn’t read patterns easily!!
Minxie _ I say WELL DONE TO YOU.
It is really good to see a positive thread. I get a huge grin on my face when a friend folds me on to her ride on mower and I can pretend I am on a big tractor whilst helpfully cutting her grass. I feel slightly less useless and like I am making a small contribution, plus , she feeds me brownies… A win win win situation.
congratulations on your MA. A great achievement and highlights that life doesn’t have to stop because of MS.
Hi Ssssue, Anne and Derek,
Thank you so much for your very kind comments.
I think the best thing we can all do is just keep on keeping on !