My MS journey is long (15+ years) and convoluted (I was ‘forgotten’ by the medical profession for 10 years!), suffice to say I started Ponvory treatment just after Christmas. My MS does not, generally, affect my mobility, so I’m fairly active, enjoying going to the gym and cycling. However, since starting Ponvory (after an MRI found a lesion at C6 in my spine, to go with the other 40+ in my brain) I’m suffering from cold after cold after cold. It’s relentless, and is affecting my ability to exercise.
This is a common side effect of Ponvory treatment, which is understandable when you realise how the drug works. That doesn’t make it any less annoying though.
I was wondering if anyone else on Ponvory has experienced a similar ‘perma-cold’ and can offer a smidge of hope that things will calm down at all, or whether I’m just going to have to learn how to deal with it.