Hey,
I posted on her a few weeks ago.
Since then my pins and needles became more painful and much more intense. I managed to get a telephone appointment with the Doctor. She was really lovely and prescribed me some Amitriptyline (she explained why she had prescribed it and the benefits of it).
I have been taking it for a couple of days, it’s too earlier to tell but it seems to be helping a bit. I know I won’t know the true effects until at least a couple of weeks.
Since I last posted my eye had been twitching quite a bit. I have already been to the Opticians and he performed and in depth test and said my eyes were fine.
What I would like to know is can the eye twitching get worse or is it just a nuisance? Would they even show up at the Opticians unless it was twitching when I was there.
Secondly, I took my dogs out for my hours exercise and my legs were so weak. It was a struggle to walk as in my legs felt exhausted as if I had been playing football for an hour. Could this be a sign of MS or a side affect of that drug? I can’t tell as due to the lockdown I have only been going for a short walk.
My legs literally still exhausted. Worried that I won’t be able to play tennis or football again. I used to be really active do I figured if just going out for a walk for an hour has exhausted me something can’t be right, they coupled with my pins and needles and burning and my eye twitching something is defo up.
I have noticed though that if I sit in a certain position and text I get pins and needles in my left hand. As in when you have been lying in a certain position.
Sorry for the essay just wanted some advice with the above
thanks
Hi Sarah, I take amitriptyline for nerve pain and it really keeps it at bay…been on it for 20 years!
I doubt it is the cause of your tired legs. Walking for an hour is quite a long time when you have MS. What about taking shorter walks?
Baclofen can cause weakness in the legs…so if you go on that, be aware. It caused me to fall more.
No, chuck, it will be the mS causing the tiredness…that`s what it does…little blighter!
Eye twitching is also a very common thing with MS. It comes and goes with me…it is a nuisance I know!
Pins and needles…another form of discomfort/pain with MS.
Dont panic over any of these symptoms…maybe the amitriotyline will help.
Boudsxx
Hi Sarah
Did your issues start a few weeks ago? My first symptom was a twitching/flickering eye lid. By itself apparently it is fairly common and not anything to worry about but then like you other symptoms started including the tingling in my legs and feet and leg weakness. My vision actually became effected (double vision) and I got a lot of tension in my face.
I was off work 2 months trying to get to the bottom of it. I had all the tests and they came back clear. Given my symptoms my neurologist assigned a diagnosis of FND. I had never heard of it but apparently it is quite common. I have a thread on this board detailing my journey. The eye twitching has not got worse. It is just one of many symptoms that comes and goes.
I am no expert but believe a lot of these conditions get worse if the person are under stress. Since getting my diagnosis I feel a lot more calm and some of my symptoms have relaxed. I think the not knowing (especially due to it being neurological) can send people into a downward spiral. Meditation using the CALM app has also helped me. Hopefully you can get to the bottom of it quickly and start to move forward.
kind regards
Jonathan
Hey Bouds,
Thanks for the reply.
My legs feel really weak. My calf muscle has started to randomly twitch the symptoms seem to progressing really quickly which is a real worry.
I literally went for a 10 min walk yesterday and struggled!
Feels like I will never be able to play sport again or do any of the things that I used to.
Can the disease literally progress that quickly over a few months? X
Hi again.
Everyone is different, but the progression was really quick in my own case.
Remember to pace your activities and never beat yourself up about having MS.
Some good support does help.
Boudsx