This is my first post here, although I have read post by others before. I was disagnosed with RRMS in June after a year of symptoms and a relapse in May.
After a long struggle I finally found out this morning when I phoned DWP that a decision was made on my claim for PIP on Friday, and they have disallowed my claim. I am gobsmacked, and devastated.
I never imagined they would turn me down flat, I thought I would get something. I was really counting on getting something before Christmas as I had to give up work in August due to my MS. I can’t believe it. I have a child and she has hardly anything for Christmas, I don’t know how I am going to buy Christmas dinner for us.
I was put into the ESA support group without a medical, and thought that might help my PIP claim. I don’t understand how I can be eligible for ESA support group, but get nothing under PIP?
My ATOS assessment was awful and I went in without understanding what they were assessing. It took ATOS until October, after having the assessment in July, to send the report to DWP. In November the DWP had to request a ‘supplementary report’, which was received on November 22nd. I was phoning them at least once a week and got my MP involved to help me get a decision.
My road tax is due at the end of this month, I was hoping to get money off that or get it free. I cannot get help from care & repair to get curtains up. And I can’t get the warm home discount either.
I don’t know what to do, I really need this help. Do they not know what they are doing to people? I should get my decision letter in the post tomorrow, and a case manager will phone at some random, unannounced, time in the next fortnight. I know I can ask for a mandatory reconsideration, but I don’t know how long that takes or how likely it is they’d change their minds, or if it still gets backdated to my claim date. As horrible as it was, I’d go for another assessment now that I’m a bit more informed. I did a self assessment recently on the benefits and work site and it said I should get both components of PIP. I was completely unprepared for this mornings news.
I’m sorry to go on, but I need someone to talk to to get all this off my chest, and maybe someone here can help with advice please? I just don’t know what to do, I had a list of things that I needed to pay for and buy with this money. All hope is gone now. I don’t feel like even trying anymore, I have physio today and my Avonex injection this afternoon, what’s the point of putting myself through all that. They’ve just made me feel worthless and undeserving and I don’t understand why.