I’ve been demoted by PIP from a high mobility rate to the lowest they could give, nothing has changed over the last 11 years only gotten worse with more relapses. 99% of my time I’m in the house the rest of the time I’m at the doctors or hospital and will be moving to a Level – 2 DMT.
I’m going to challenge their decision they made against me, it’s unjust.
So I would be very grateful if you have any good info or advice or links I could use to challenge them please let me know.
When they send a 22 year old idiot nurse out to assess me who is definitely not a doctor, definitely not Neurologist, definitely not a MS specialist Neurologist and is basically knows nothing about MS, to me that’s not an assessor All they’re trying to do is reduce everything they can, that’s what they’re looking for and that’s what they have done.
I’m so angry with them; the assessor had no interest in the pain I’m in, how difficult it is just to move about the house, concentrated more of the laptop that she just had a mandatory 2 week course on. BIG BAD WORD!
Join the benefitsandwork forum it’s about £20 for the year to join but so worth it. It has guides to tell you how to go about getting a mandatory reconsideration, which you have to do before you appeal, and it tells you how to appeal too.It has easy step by step guides.I joined a few years ago when i had to apply for ESA from Incapacity benefit. I have not had the dreaded PIP forms yet i am still waiting, but I am already reading the guides on the benefitsandwork site. Good luck with it all.
I’ve been demoted by PIP from a high mobility rate to the lowest they could give, nothing has changed over the last 11 years only gotten worse with more relapses. 99% of my time I’m in the house the rest of the time I’m at the doctors or hospital and will be moving to a Level – 2 DMT.
I’m going to challenge their decision they made against me, it’s unjust.
So I would be very grateful if you have any good info or advice or links I could use to challenge them please let me know.
When they send a 22 year old idiot nurse out to assess me who is definitely not a doctor, definitely not Neurologist, definitely not a MS specialist Neurologist and is basically knows nothing about MS, to me that’s not an assessor All they’re trying to do is reduce everything they can, that’s what they’re looking for and that’s what they have done.
I’m so angry with them; the assessor had no interest in the pain I’m in, how difficult it is just to move about the house, concentrated more of the laptop that she just had a mandatory 2 week course on. BIG BAD WORD!
Any advice would be great, thanks
David
[/quote] Get you completely David- I was turned down completely and in the process of appeal at the moment - The reply they sent me and reasons really made me wonder if they read the form - I thought my assessor was a lovely young lady but the guy in the advice centre said they were smiling assassins - if MSers are being turned down, there is little hope for anyone else…
I’m sorry to read that you’re going through this difficult process, but please don’t feel you’re alone, you certainly aren’t, so hang in there, help and advice is available.
Firstly, I think you should contact your local branch of the CAB, they are experienced at handling PIP claims and appeals. Secondly, do as Mrs J suggests and contact Benefits and Work https://www.benefitsandwork.co.uk/ they have a wealth of information to offer.
And thirdly, I would suggest you contact your local MS Society, they may have some useful ideas. In my case, a few years ago when I was of working age, I had to appeal against an Atos decision which, thankfully, I won. In my area, at that time, the local MS Society branch offered an MS advocacy service helping with benefit claims, employment issues, home adaptations and many other matters. Unfortunately, there are very few of these advocacies about, but you could just be lucky and live in the right place. But failing that, I would urge you to try the other two agencies I have mentioned.
Also, of course, keep coming back to the forum; members may well have further suggestions.
I can never understand who someone with full mobility on DLA can get little for PIP, then you read the criteria it is all different and very clevely worded. a lot of people loose points when they turn up in a car as they can clearly plan a journey. very clever.
you need to appeal obviously. there are a few threads with great information on how too.
I went with my careworker and hubby in our kangoo. she pushed me in wheelchair, and my gp and neruo had sent in very good supporting letters on how my MS was affecting my life.
i think you have to get your neuro and GP on your side and use every tiny bit of evidence from physio or OT that you can.
good luck it shouldnt happen. i think if your diagnosed with a disease like MS maybe they should go by the EDSS scale.
Simply ridiculous, and the stress they put you through. its maddening. glad you got through it in the end. I have friends with family with mental health issues and everyone of them has got PIP with no issues. Which is great as with DLA they would have failed. its helped them a lot to get support and help with their issues. Then on the other scale…
I know of one person not diagnosed with anything specific who got full mobility, and she walked into my house telling me how hard the assessment was. Then i read on here about people with MS struggling who cant get it, it makes no sense to me.
As mentioned on a different thread - I know a young man who had a bad mental episode but has recovered well and back at work whilst still on medication - got his PIP through with no problems - so it seems to be tough for people with physical disabilities to get any result at all - worth looking at.