Good afternoon everyone. Hopefully life and MS is being kind today.
I warn you now, this is quite a long post!
I have read with interest the thread regarding “PIP Report from ATOS”. I know you’re all going to tell me not to worry about something that may not happen but I receive DLA and it was awarded indefinitely and will not be looked at again until 2015 when we all have to change over to PIP. I have been off work since October 2013 and it is now obvious that I will now not be able to return at all so I am now in the position of having to claim Benefits for the first time in my life (I’m now 51). My MS has become extremely aggressive and all symptoms are extremely active and progressive. Thank you everyone for your input on how unfair and stresssful this interview is and the pitfalls that we should look out for. Why should we have to prove our existence to the point of still being able to breathe. I can no longer do anything without to help and assistance of my OH. I could list everthing I can’t do but the list would be endless together with the list of all symptoms that I have. My mobility is now virtually nil and cannot move without aids or assistance. Everyone who knows me (medics, MS nurses, neurologists, neuro physios, occupational thereapists, family, friends, colleagues etc.) have all known me since diagnosis in 2000 and have seen the deterioration over that time. How on earth do you convince someone who has never met you before that you are no longer fit for work (in my case fit to carry on with normal life without other human help). I was a legal secretary and this has taken me an age to type (I used to be able to do 100wpm, now I’m lucky if I can do 10!). This whole situation is even now making me extremely nervous and I would appreciate everyone’s thoughts and experiences. I am in the course of trying to claim ESA at present and this is bad enough so the next streps are terrifying. Thanks in advance for your replies. Linda x