Having to unravel everything myself seen as my neuro is not much help. So I had what I think is TN for 3weeks (stabbing eye pain, borring eye pain, cheek dullache, forhead pain and jaw spasm). In the middle of this period and since then I've noticed I'm quiet light sensitive too. The last two occassions it's been bright I've literally hidden in the car with my hands covering my eyes and the visor down and still felt terrible.
Is this part and parcel of TN (I think I have the ophthalmic branch version) or is occipital neuralgia? I've had neck problems since before my neuro symps started last July and had physio/ chiro treatment though spinal MRI was normal. I have occassional pain/stiffness on the left side of my neck at the top but touching this doesn't seem to set off any obvious light sensitivity or pain in my eye or light sensitivity. And to be honest the pain and stiffness is 80-90% better than what it was like last July.
Anyone else had experiences with TN or occipital neuralgia and photophobia?