Good morning to all,
Well I had my long awaited app with my neurologist yesterday, after the barrage of tests performed over the last 4 months and yes, it's official, I have been dx'd with MS, ( gulp )!
A few of you will know that it's no surprise to me as I've suspected it for a cpl of years before eventually seeing my gp and getting the ball rolling so to speak, but I was surprised to hear that he's sure it's RRMS, ( as I had prepared or convinced myself it was SP ) and he believes I've had 2 relapses since Dec 11 and therefore meet the criteria for dmd's which he wants me to start asap. I was also surprised that he has estimated I've had the disease for at least 18 yrs. ( I'm 45 )
He prescribed gabapentin for my pain and said I should get my app with my ms nurse within 4 weeks ( I won't hold my breath ) and to have made my decision as to which dmd I would like to be treated with by then.
My gp had signed me off work for 2 weeks as my symptoms have gone abit crazy of late and I was finding it abit hard to cope and think the last few months have finally caught up with me but I'm due back to work on Monday and now am unsure as what to do. I work at a university, cleaning student accomodation, o the joy lol but this time of year is our busiest as the students have left and we have to prepare all the houses for other visitors to move in over the summer for conferences ect and it's been pretty manic, they gave me 5 casual workers who I now have to train, supervise and check their work ect and it's really taken it's toll on me. I only work 6 hrs a day but it's quite physical, cleaning for 6 hrs straight with only a 15 minute break.
My neuro has said how important it is to remain working for my emotional and physical well being and I totally get this but I'm not sure if I should be looking for a less physically demanding job in the future, my employers are not yet aware of my condition which is another worry hanging over me and I'm not sure I'm ready to go back yet but on the other hand I don't know wether I should just get on with it and hope for the best.
I'm full of mixed emotions right now, my head is all over the place and apologies for rambling on !
Hope everyone has a good day :)