I was formally diagnosed with RRMS last week but, in reality, had know for a few years that was the most likely outcome - following an episode of CIS in 2008, my neuro avoided the formal label until the point he felt some treatment would be appropriate.
My day to day symptoms are pretty manageable although someone is playing a nasty joke as the last couple of days have been my worst for fatigue for several months.
I’m seeing the MS nurse for the first time on Friday and am wondering how to make best use of the appointment. I’ll hopefully see the neuro again in late September - had to be referred back to him on the NHS as my initial consultations and tests have been covered by medical insurance. He says he’s expecting me to tell him which medication I want to have when I next see him.
Background that may, or may not, be relevant:
I work full-time (one day a week from home) in a senior role with a commute (mainly train) 1.5 hours each way
I’m off to the US on a 10 day work trip in six weeks and don’t want to make a rush decision about telling work about my MS
With some physical symptoms, I struggle to know if they are MS-related or not
I’m not sure how to identify a relapse!
I’ve told my husband, parents, sister and children (12 and 14). They expect life to carry on for them as normal…
So, with that random selection of information, what advice or reflection would you give?