You are know different then the day before your diagnoses you were coping then. I think sometime having the label can send us into a spin of worry and anxiety, but we forget like you and me (i waited 10 years) you have had this 7 years well you have been trying to get answers for 7 years you probably had it before then, so are you a cripple now? No you have probably had it a good 10 years and just carried on as you normally did.
So my advise to you is just carry on as normal, find out what is next by the neuro your young so should do well with DMD, and like others have said you may not have another relapse for a long time.
Just pace yourself, dont push yourself, look at your diet, no more processed food lol, or sugary stuff, get active and healthy it does work and it does help.
Tell your children you have an illness that might make mummy more tired then usually in the next few years but its nothing to worry about. Get them helping you a little more make it a game, and use a reward system for them. Make it fun, so they dont become scared.
You can do this yes of course you will be scared, its like a grief and goes in stages, but try not to show your children, if you can and when you feel good take them out and make them feel special and yourself. Dont forget to treat yourself, new hair do lol, nails, go get busy hun, just because you have MS doesnt mean you wont have another partner. I know quite a few people who have met on MS groups and married and are very happy.
Remember you have had this a long time, and your still here, and your not crippled, by the way MS does not cripple us in the sense of the word, yes it may slow us down, and make it harder to walk, but a lot of people have this without MS.
MS is a challenge are you up for it? Of course you are, and tell your knob of an ex to go and do one lol. xx
NB: I will share this i wasn’t going too. I met a lovely lady through my passion for chickens she came to see me to collect some off me. She was my age well a few years older then me, and had been diagnosed with MS for years. RRMS. She worked everyday in a fantastic job, and travelled all over Europe and the states, and was actually just back from a routine visit to Holland when i saw her. You would hardly believe she had MS to be honest she got tired yes and had her odd days of aches and pains but just pushed through as she loved her job.
I met her in 2015 we talked all the time on facebook and i followed her flights and conferences.
She complained of a weird back ache and was going to the GP with it who kept saying it was just her MS nothing to worry about.
After nearly a year she started to show signs of wear and tear and was finding it really hard to carry on with her job. I told her Sophie, you must go back to a private doctor and get this back sorted there is something not right about it. Finally she did, and it wasnt MS at all causing it. Sadly she had cancer in her spine which had become inoperable and was now in the terminal stage. Just like that.
We talked every day this year on facebook and she was kept downstairs in her huge kitchen which became her sick room. She was so strong we forgot she had MS. She fought a hard fight but sadly we lost her 4 days ago, she went quietly in her sleep. I was devastated as she was my idol to be honest. 69 she worked all her life never had a day off even with her MS, and she was so well loved and respected by the people in her field.
Why am i telling you this i am not sure to be honest, just to show you, she had MS she never let it get her down and she carried on working hard and it wasn’t MS that crippled her in the end in one respect it was NEGLECT if he had been taken seriously at the beginning she may well have still been here, as the cancer would have been operable and not Metastasised.
So dont worry about the MS you will always have it, but you can still also have a normal life a good life a rewarding life, watching your children grow, get married have children of their own, like she did.
Science is finding new ways to deal with MS and there are a lot of good drugs out there now, so find out what is going to be right for you, and live your life the best you can as non of us know what is around the corner for us.
I am sorry if anyone find my post offensive but i felt the need to share and i felt it relevant.