Brief background- I am a 28 year female. Work as a doctor- I’m a paediatric trainee. Just got married
I have just been diagnosed with MS. Symptoms started whilst I was on honeymoon- intermittent loss of sensation in my feet, which was so fleeting I didn’t think anything of it. Symptoms progressed when I got home, with increasing sensory loss progressing up my legs. At the end of September, I saw my GP and got referred straight into see neurology. MRI showed a lesion at C7-T1 and I was diagnosed with transverse myelitis. Had an LP done (had an absolutely dreadful time after this with low pressure symptoms), which was positive for oligoclonal bands. VEP was negative. The initial MRI showed no lesions in my brain and just the one lesion in the spine. Had 5 days of oral steroids. I had a repeat MRI with contrast, which showed evidence of further lesions in my spine, which were older as they didn’t take up contrast. So after initially being told to stop thinking of MS and to get it out of my head, the chance of it being MS was low. I returned to my follow up appointment to have the bombshell broken that I have MS. Not what I was expecting! Been told I don’t qualify for DMD. Does anyone know when I would?
I currently have loss of sensation up to my waist, but no motor symptoms. Legs and abdomen often feel like they are wrapped in tight bandages. They seem very tight when I’m cold and when I’m hot they get very prickly. I don’t have any motor symptoms. Struggling with fatigue- if I do too much in one day, I seem to pay for it the next. Not quite worked out where my limits are yet.
I’m just wondering how long it took for people to return to work? I’m aware this is a ‘how long is a piece of string’ question! So just after personal experiences. I feel bad, as I’m able to do stuff day to day. But the thought of working on a busy ward is overwhelming and the thought of doing a 12 hour shift or nights, just feels impossible! My neurologist said not to return until my symptoms had gone, but they show no signs of budging yet, so how long is this going to be?! How long do you find the fatigue lasts for with a relapse? Or is this here for life now and i’m going to have to learn to deal with it?
If there are any doctors here with MS, then I’d love to hear from you. How do you make it work? Have you had to change anything since diagnosis.