I’m a bit confused.
I ‘probably’ have MS. Last time I saw a neurologist, in April, she sent me for evoked potentials test and brain MRI. Spinal MRI already shows lesions in thoracic area. We agreed that she would refer me to MS specialist if tests indicated MS or back in her clinic if not. Abnormalities and inflammation showing in brain, evoked potentials indicate problems on left hand side - I received a letter saying I was being referred to MS specialist. NHS time has ticked by and I’m awaiting seeing the MS specialist on 12th October. My GP is chasing this up because I seem to have been put down as a ‘new’ patient, but no change in date yet received.
Since July I seem to have been having a relapse. When I saw GP initially I said I wanted to continue working but he advised a temporary change in hours to try and accommodate excessive fatigue and stress. Employer said change in hours: change in pay. This I could not afford therefore GP signed me off sick (full-time company sick pay).
I’m now at the point of feeling able to work, though I appreciate that full-time is looking more problematic.
I’ve had an Occupational Health review and the nurse has recommended 3 days per week until I see the neurologist, gain a diagnosis and possible treatment plan. Then review. Once again employer states pay will be reduced accordingly.
My line manager wants to know my decision and how we’re going to work this.
I’m feeling pressurised to accept part-time work even though I may, with treatment, get back up to near full potential. My major, major concern is my mortgage, which has 5 years left to run. The cut in pay will prevent me from keeping up my payments on that, or my personal loan (also 5 years to go). I do not have critical illness cover.