Hi everyone!
I’ve been under nuero watch since 2023 after some spinal lesions were found, regular mri’s with nothing new since, however in June I had a small ON attack, which lasted about 2 weeks, now currently in the throws of another with 80% of my vision gone in my left eye. I’ve been on Methylprednisolone 500mg daily for 5 days with no improvement sadly, also off the steroids now with all sorts of fun symptoms!
I have another week until my MRI and my neuro won’t see me until he has these results, but really hoping for some positive outcomes or just words of wisdom on next steps, no one has really given me any explanation or answers on what is happening right now, or if my vision will come back!
Thanks again 
Hi @Nalalou I can sympathise with your vision problem. It was the first thing that I had back in 1993 when I woke up and the vision had gone in one eye. It was a frightening thing. It was three months before it started to return and a further three months to be back to normal. Since then I’ve lost it twice more. Same eye and then my other eye. It was nowhere near as bad them times. Once was just a week and the other time just a day. It was still a worrying time though because I didn’t know how long it was going to be. I know that there’s plenty of people, not just on here but around in general who are far worse than I am but, it was a frightening experience and I dread it going and not coming back. I don’t normally worry about too much because generally things are out of our control. Loss of sight being no difference. My vision is normally quite blurry first thing in the morning but, losing it completely is a whole different thing.
Whether your sight will return I don’t expect that anyone would give you a definitive answer to that. All you can do is wait and hopefully it will. Wishing you a speedy recovery.
Hi @ all I can offer is my own experiences. Around 19-20 years ago I too had optic neuritis- although I didn’t know what it’s was called at the time. I lost pretty much all vision in my right eye . Went to the local hospital eye unit and couldn’t even see the screen from which is was supposed to read out the letters! From there I had an MRI leading to a diagnosis of Relapsing Remitting MS. My vision did return but slowly over maybe a couple of weeks or longer for full colour vision to return and neither my general vision nor colour vision have recovered fully.
Optic Neuritis isn’t unique to MS but is often a symptom. If the neuro does diagnose MS then the next steps would be choosing a Disease Modifying Treatment/ Drug. You will probably be given a short list of the ones that the Neuro thinks could be most effective .
I hope you get answers soon
Two bouts of ON 5 months apart led to my diagnosis of RRMS 7 years ago. Took about 18 months for my vision to return to pre-ON level in one eye. In the other I was left with residual damage. It also left me colourblind. I hope things work out for you. As others have said, ON is no fun.