Hoping to get some advice on ON recovery times and experiences as I am experiencing lingering eye pain which is worse than at the start.
I recently came down with optic neuritis in my right eye around 22nd March and had a MRI which confirmed ON and showed lesions on the brain which they suspect to be MS (I have a neuro appointment booked for July so limbo for now) I was placed on a course of steroids for the ON: 1200mg of Methylprednisolone for 3 days then onto prednisolone at 60mg and tapering off. In fact my ON recovered astonishingly in the first 3 days of steroids and vision now is still nice and clear. However 4 weeks now since coming off the steroids (the doctor gave me a quickened tapering off course when she heard of quick recovery) but I have now in this time been experiencing eye pain in BOTH eyes, made worse by eye movement, light and screen time, especially my phone. Is this normal? Is it possible that the ON has potentially come back but in a way that hasn’t affected vision?
Would be great to learn from anybody else’s experiences with ON and recovery times, and you have dealt with any eye pain (especially at work)