Thought I’d register on here and type up a bit of what has been going on with me. I’m pretty convinced I have MS. Around Christmas I started to develop slight tingling sensation in my fingers, very intermittent at first but then more frequent. Then my legs started getting achey and heavy (intermittently at first), now, although I can walk around (slowly) I can’t stand on tip toes, walk at any pace and after Wales won the 6 nations I did fall over, and was unable to get up. Fortunately outside LGI, and one of my mates carried me in and after 15 minutes I was up on my feet again.
I’ve had an MRI (negative), blood tests (negative), but Nerve Conduction tests have registered as abnormal, and need to go back to see the Neurologist and Neurophysiologist (not sure how I got the 2 appointments, but I’m taking them both because I am getting so utterly angry with everything). What has made things worse is because of all the “tooing and froing” from the NHS I now have stress related anxiety, for which I have been prescribed Citalopram. These seem to be working, to the extent. But I find that I am pretty numb to a lot of things now. Not hugely but as I described to the Dr’s, my lucid consciousness has all but gone, I have no imagination anymore, frankly I have very little desire to do anything physical. Again this is hugely frustrating, and the Dr’s I have seen are being as helpful as chocolate teapots. Apparently “I’m an interesting case” and they can “understand what I’m going through”. But how can they? Being told by a middle aged referrer(my affectionate name for the Dr’s at my local practice) that they can appreciate how hard it must be. Rather than making it look like I am ranting, to put this in perspective, last year I did the Yorkshire 3 peaks, was a keen gym goer (benching around 100kg), now I struggle to maintain hold/grip a dumbbell of 4 or 5kg and sometimes squeezing a shower gel bottle is an effort. Walking is difficult, but some days are better than others, running is absolutely out of the question, and if I jump, or put too much weight on my legs unexpectedly I will stumble and my legs feel really rubbery. I’m sick of being in “limbo land” as it’s called, I have weeks of what I think is gradual improvement and then it comes back! Moreover, when I have bath and get really warm the problems are hugely exacerbated, and my hands are out of actions for a few hours. All of these things make me feel really bad for my amazing partner who I must truly pee off with my negative/flat attitude.
All this is made worse by the fact that I’m never ill. My partner use to laugh that if I had a cold, it lasted a day. I’ve had this numbness/tingling since December, I can’t work out, can’t go fishing, can’t really do anything that I am use to/want to do. I just feel helpless and angry and frustrated.
Does anyone else understand what I’m saying?