Hi Jessie, I was in your present position some 12 years ago now.At the age of 48 and having worked for 32 years, my future was looking like it would be in retirement. My neuro, although he couldn`t give me a diagnosis, did advise me to exclude work when planning my future.
Retirement on ill health grounds did follow soon after his prediction.
At the time I simply couldn`t imagine several things.
How I would pay my bills
How I would fill my time
3.How disabled I would end up.
All these things filled me with dread. But, like you, I could stop feeling guilty about being on long term sick.
you need to sort out what benefits you are entitled to. I know things have tightened up since I retired. But even so, you must be eligible for DLA. I didn`t know i could have applied for this whilst still working. Do you know that? Nobody told me!
I read on here that ESA is more of a nightmare than IB was. Many folk here advise joining something called Benefits and Work. It costs £20 a year, but they give enormously helpful advice, on how to claim and how to appeal. Might be worth looking into, eh?
Then there is the question of your home. Do you think you need aids to help you live safely and more easily? if so, then ask for an assessment from an OT.
I have had these many times and they come up with ideas i never knew about.
I hope your transition from work to retirement goes well. You can always come to this site for help, support and friendship.