I was wondering if anybody could share their experiences following their first infusion, especially if Ocrelizumab/Ocrevus.
I had my first on Monday and had a mild reaction which dissipated with more antihistamine and a slower infusion speed. However, it’s now three days later and I still feel super lethargic and a bit shaky and heavy heartbeats that come and go in bursts. It feels like anxiety and is thoroughly unpleasant, plus there seems to be an element of depression there too - my MS nurse said this could all last for two weeks, at which point I then have Part 2 of the first infusion (they split it 5050 the first time around), so could mean a further two weeks feeling pretty wiped out, a month in total.
Keen to hear other people’s experiences and side effects - and duration!