Just an update!!! Had a letter from nuro thismorning, results of mri!!! Im so confused !! The letter says, the mri spine of this lady came back showing wear and tear of the the cervical spine but no cord or route conpression is present. . I think this is reassuring. . What does this mean?? Is this what causing all my symptoms… No explanation or anything … still no follow up appointment … doesnt say if I have to go back to my gp… what do I do now??? Vickie x
Hi Vickie,
No, I think he’s saying it’s NOT causing the symptoms. Although there are signs of wear and tear (damage!) he’s saying it is NOT putting pressure on the spinal cord - which would be one of the things they were looking for. He doesn’t mention any lesions either.
Did you also have a brain scan?
Tina
x
Hi Tina, Thanks for your reply! ! No doesn’t mention lesions in his letter, and no didn’t have a brain scan just a full spine scan… But what confuses me more is that I had a degenerative disc in lower back in 2006 but no mention of that! Vickie x
Hmmm. Cervical spine is definitely the neck, so the wear and tear he’s talking about doesn’t seem to be the degenerative disc that was found in 2006! It does seem odd that the latter would not also be mentioned. Unlikely, to clear up by itself, I would have thought! Unless he’s not mentioned it because it was already known about? Perhaps he’s only interested in new things?
It still seems a bit sloppy not to mention ancient findings, though - just in case they had worsened, and might be causing the problem. They ought really to mention anything abnormal, whether or not it was already on your file.
Tina
x
My thoughts exactly Tina… especially when I have severe pain and atrophy with no reflexes in left leg, with back pain… In my initial nuro appointment the nuro said their was nothing on data base about my mri back In 2006… which I found very odd because I knew I had one… dont know what happened to that!!! But luckily my gp had it on my file. . I think my nuro thought I was telling fibs… haha… so I got a copy and sent it to my neurologist. . Not sure what im to do now!!! Do I contact my gp and try and find out whats happening. … if im gonna have further test etc.?? Thanks Vickie x
Hello Vickie
Your scan shows wear and tear of the cervical spine (neck). Medical term…Cervical Spondylosis.
The symptoms can be mild or severe.
Pain in neck area, shoulders, base of skull.
Pain can spread down arms and hands…from spinal cord in neck.
Some people suffer with headaches.
You mention a previous scan, showed deterioration in your lower spine…this of course could potentially result in lower limb problems.
Having said all that, bear in mind Vickie that not everyone will suffer the above symptoms.
What you should be doing, is making an appointment with your gp to discuss the neuro letter.
Neck excercise could be beneficial for you…help keep the muscles strong in that area. Perhaps ask for a physio referral.
All the best to you xxx
Thank you Blossom,
Im going to call my gp In the morning about the nuro letter and also ask about my unequal pupil…
Im already seeing physio for my left leg pain and atrophy, but not due to see her until the end of January tho…
Vickie x
Hi Viks. Blossom has explained it very well but just as interest similar to you when I saw neuro I mentioned I had had an mri of head and cspine 4/5yrs ago but they couldn’t find it nor could gp and said no hospital had it I phoned the hospital where I had it done and got a copy sent to gp so seems they did have it. That mri showed narrowing on cspine on 1 disc nerve outlet but like you I got told by neuro nothing on my recent one although I am waiting for report to read myself (requested 3weeks+) ago Take care. Hope you get answers A xx
Thanks Arwen hope you get some answers soon too… Its is pretty odd why theirs nothing saying about my degenerative disc as that was one of the main reasons why my nuro ordered a full spine mri, with me having absent reflexes in my left leg and atrophy and many other symptoms… Just makes me wonder if he’s keeping something from me… and thats why he’s not mentioned it… im getting so anxious my mind is going in over drive, plus still haven’t got my follow up appointment yet… Im going stir crazy Vickie x
Just another quick update!!! The nuro secretary called me this morning saying appointment should be soon as it has 0 months on my notes, I asked about what was on my letter and she said she couldn’t discuss it… thats whats my follow up appointment is for. . Also phoned my gp and they said the same… Why won’t anyone talk to me?? No wonder people get stressed… Vickie x
Hello Vickie
Its probably better to wait until you see neuro, rather than go to your gp…up to you of course. I’m just thinking its the neuro who wil be discussing what, if any test will be needed next.
Regarding your gp though Vickie. Not being able to discuss your letter, is a load of old rubbish. My gp is the one that accessed my ms diagnosis from her computer…must admit it did shock us both. I’d only been referred to neuro for headaches. Hey ho…such is life
How long have you been waiting since your last appointment Vickie?
This is what you do if it is more than six weeks.
Ring neuro secretary next monday and ask about letter…if nothing by thursday, ring or email PALS at your hospital and they will contact the department for you.
Take care
Thanks again Blossom for your responce…
Yes im going to wait and see neurologist, my gp has never been helpful…
Maybe time to change doc’s …
My appointment was 5th Nov, so yes longer than 6weeks ago but I suppose can’t include Christmas.
The thing thats making me crazy is thinking the nuro is keeping something from me!
Are they known to do this?
Or am I jumping to conclusions? ?
Vickie x
Your jumping to conclusions Vickie but understandable They are not keeping anything from you…I promise
Just follow the advice I gave you above. Take care,
I will Blossom. . Just being abit silly… V x
Your not being silly Vickie…how your feeling is quite normal. Feel just like you myself at times…luckily my husband brings me back into line lol.
We are just little old human beings with all our weaknesses…mines chocolate