Over the last few days I have become a bit numb between my legs and my bottom. I’m not constipated though. Yesterday I went to go to number 2 and it was already coming out of me as soon as I sat on the toilet. Sorry for the details. To describe it. I would say have you ever sat on a wall or sat somehwere and your bottom has gone a bit numb, like its a bit cold. Its like that also my left bottom cheek feels a bit numb too. I have felt quite sad over the last few days about somethings and its got me stressed and upset. So may be thats why this started.
I have been offered DMD’s and I guess I really now should be considering them. I have an appt with my GP tomorrow afternoon xx
That pattern of numbness is certainly one of the nice tricks that MS can play, I’m afraid. Please try not to beat yourself up about perhaps having brought it upon yourself by being stressed and upset. Stress doesn’t help MS, that’s for sure, but TBH I think that MS pretty much does its own thing regardless of what its person is doing or planning or thinking about!
Good luck with thinking about DMDs. Some people find the MS decisions website helpful in marshalling their thoughts on which one: http://www.msdecisions.org.uk/
Personally, I think this would have freaked me out a bit when I was newly diagnosed, because all those pros and cons and details of side effects look a bit dispiriting. Back in my day, you got the DMD you were given (Avonex in my case) and that was that, and I’m not sure that us oldies didn’t get the better deal!
When I was dx with RRMS in 2008 I started keeping a diary of my symptoms, one of which was feeling like I had been sitting too long on a cold wall. This lasted for about 6 weeks, but it passed
As far as your No. 2 problem, I have just moved into that phase, but I wasn’t sure if it was due to the MS or having had two children in the past! … menopause and weak pelvic floor on top of MS - oh joy!
I have been on Tysabri for 3 years now (JC negative, yippee) and most sensory problems seem to have subsided … apart from tingly fingers, but I think that goes with the territory … I’m pleased to say I haven’t written anything too major in my diary for that time now!
When I was dx with RRMS in 2008 I started keeping a diary of my symptoms, one of which was feeling like I had been sitting too long on a cold wall. This lasted for about 6 weeks, but it passed
As far as your No. 2 problem, I have just moved into that phase, but I wasn’t sure if it was due to the MS or having had two children in the past! … menopause and weak pelvic floor on top of MS - oh joy!
I have been on Tysabri for 3 years now (JC negative, yippee) and most sensory problems seem to have subsided … apart from tingly fingers, but I think that goes with the territory … I’m pleased to say I haven’t written anything too major in my diary for all that time now!
I’ve had this couple of times, not nice using the toilet and ruins sex life for a while, BUT it didn’t last. Went away after a couple of weeks. Quick tip for you…get some wipes to use in bathroom because I know when I’ve this feeling in the past I was unsure whether I was clean or not and that destroyed my confidence.
Make sure you mention it to GP when you see them tomorrow
Take care
P.S Sorry to reply ANON but think I’ve got a family member lurking about the forum and it’s a bit delicate ain’t it?!
I’ve had problems with my lower digestive tract in the past (unrelated to MS). I kept a packet of moist toilet tissue in the bathroom and a packet of baby wipes in my bag when away from home for cleanups. I found a make-up bag that was just big enough to hold the wipes and the other bits and pieces I needed - including, if necessary, spare undies.
Now I think some of the nerves involved in bladder function are starting to be affected so I may have to get that make-up bag back out.
I saw the GP today he offered me steroids for the numbness down there. I said I would think about it as it might be best for me to save steroids for something worse if that happends.
The neurologist I saw 4 weeks ago wrote a letter to my GP but I wasn’t cc’d into it which I felt quite suprised by. I usually am cc’d into the letters before with other neurologists. Anyway the GP gave me a copy, there was quite alot on it so I amended some symptoms that were incorrectly described and posted it back to him.
I still have the numbness between legs though I think it is going a little. Have also a numbness patch under left foot and numbness on left bumb cheek has migrated down my back leg a bit. I went to the GP surgery to do a urine sample test, this was also advised for me to do by MS nurse on Friday morning. I went to the surgery and waited around drinking but was unable to go, was advised can bring sample down later before 4.30pm that day. I took sample down at 4pm, receptionist said would get it dipped by a GP to check but might not be able to send off anywhere as too late. It was cloudy urine. Got a call today saying no it was not dipped on Friday , no one got round to doing it, so I have to bring another sample down today.