Hi everyone I’m having my first experience of numbness. Started in my left foot and now both legs up to my waist basically. The MS nurse told me to ride it out as now isnt the time for steroids. My mobility is fine its just a very weird feeling. I’m not currently on any dmds. Tried, plegridy, tec, and copaxone. None of which were well tolerated. Can anyone tell me how long this has lasted if they’ve experienced it? Thanks in advance. Laura xx
In the early days of my MS I had bouts on numbness, longest were around six weeks shortest could be a couple of days. Be careful if your hand feels numb sometimes you won’t realise immediately if something I’d too hot.
Best wishes
Jan x
Hi Laura,
Yes, I have squashy feet and lack of sense of temperature.
Everyone’s symptoms are slightly different.
My top tip - that I tell everyone - is to keep a symptom diary.
Write down what the symptom is. Date it started and date it went away.
It’s easy to forget symptoms once they disappear.
Very useful for taking to appointments with neurologist/MS nurse/ OT or to apply for PIP/blue badge etc
Take care,
Jen
Ditto to Janhhh. I learned the hard way to keep microwaveable meals on hand. I have many days now when I don’t go near the stove or oven because I can’t trust myself to not touch something hot. I also drink my coffee cold now. Brew it and then just let it sit for a while. I also limit when I use sharp knives.
With your feet, don’t go barefoot through the fields or you’ll wind up back at the house with splinters or blood dribbling down your ankles because you stepped in something that you couldn’t feel. Had to have my son pull a large splinter out of the side of my foot last week, because I didn’t even know it was there until it got infected.
My numb spells usually only last a couple hours, but they may recur daily for several weeks. Whatever part of your body is numb, just remember to protect it more than usual.