Hi Everybody
Really need some advice again!!!
After being diagnosed in October had a really awful time till mid December when I finally started to feel better and was able to find the energy to start living a relatively normal life again. Then just after Christmas I developed numbness which affected more or less the whole of the right side of my torso front and back.
I called the ms nurse just before new year and she said that their probably was some inflammation going on and i could come in to see her if it was causing me problems or I couldnt cope with it.
Fortunately it doesn’t seem to be affecting me apart from being slightly irritating and I’ve been coping by ignoring it and just getting on with things. I attended my Father-in-law’s funeral at the beginning of January and I also returned to work three weeks ago after being off for nearly four months and I seem to be managing ok.
However the numbness has now gradually spread to affect the whole of my front right thigh too. Is this normal for it to gradually get worse over a few weeks or is it something I should be worried about? Is it likely that I will be left with this numbness forever now or is there a chance of it getting better? Would this happen gradually or could I expect to just wake up one morning and it be gone?
Thanks in advance for any advice.
Ann Marie XX
Hi Ann Marie,
I get a numb right hand which comes and goes, it is like I have no feeling in it at all. I am lucky my Dr knows all about MS and helps me everytime I go and see her so maybe you could try and pay your GP a visit. If not the call your MS nurse back and tell her it is getting worse. I am lucky that mine normally goes away quite quickly (2 to 3 days). Everyone with MS has different symptoms however it is worth getting them checked out by a professional.
Sorry I can’t help further but hope you get it sorted very soon
Claire
Hi numbness and pins and needles has always been my common symptoms and these have come and gone since diagnosis in 2004 (I was 24). It got a little worse following pregnancy with a numb weird feeling arm for probably about 18 months, then had a period of numb feet for approximately six months, then sensory symptoms in my fingers which I’ve had since December 2011 and still have to now occasionally a numb left leg however I am just coming out of a relapse (hopefully) so what I’m saying is they do come and go. I seem to go through phases of getting annoyed by them and then forgetting about them altogether, it depends what frame of mind I am in and how distracted I am. Try not to worry but give the nurses a ring. It may be that although the return to work has gone well your body is feeling it. I remember being asked by the nurses if I was stressed, I said no but when they asked me about what was happening at that point of the symptoms they basically said it could be my bodies way of saying its a little tired but the m.s defines it differently. Hope this helps. Try not to worry. Although if its impacting on your life you do need to contact them Hun xxx
Hi Ann Marie,
My experience rather similar. My first MS incident (and diagnosis) was in June 2012, followed by a relapse in September. Between the two, I have pretty much lost the feeling in my torso and sadly this hasn’t come back (had hoped that when I started Copaxone just before Christmas that this might improve things but sadly this has not happened).
Hope that both of us do see some change over time…
Mel
xx
Hi Ann Marie,
My experience rather similar. My first MS incident (and diagnosis) was in June 2012, followed by a relapse in September. Between the two, I have pretty much lost the feeling in my torso and sadly this hasn’t come back (had hoped that when I started Copaxone just before Christmas that this might improve things but sadly this has not happened).
Hope that both of us do see some change over time…
Mel
xx
Hi Ann Marie,
My experience rather similar. My first MS incident (and diagnosis) was in June 2012, followed by a relapse in September. Between the two, I have pretty much lost the feeling in my torso and sadly this hasn’t come back (had hoped that when I started Copaxone just before Christmas that this might improve things but sadly this has not happened).
Hope that both of us do see some change over time…
Mel
xx
Hi. Numbness part & parcel Im afraid. My numbness is permenent now. Both sides are affected, however Ive had it so long cant remember what it was like before!! It did used to improve however in between relapses. You have also had quite a lot to deal with Id say, bound to make things a whole lot worse, even if you dont realise it! Stress is the biggest trigger in MS, sure you already know that. You seem to be coping, do try not to ponder on it unless it gets hard to cope with. Take care Tracey xx
Mel You say you have just started Copaxone. It takes a while to get into your system, been on it for 6 years, sure it will “kick in” hope its soon Tracey xx